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低收入和中等收入国家晚期慢性病患者向姑息治疗过渡的经历:一项范围综述

Experiences of Patients with Advanced Chronic Disease Transitioning to Palliative Care in Low- and Middle-Income Countries: A Scoping Review.

作者信息

Nankundwa Evelyne, Mukeshimana Madeleine, Kanazayire Clementine, Margaret Fitch

机构信息

General Nursing Department, School of Nursing and Midwifery, College of Medicine and Health Sciences, University of Rwanda, Remera Campus, Kigali, Rwanda.

Mental Health Department, School of Nursing and Midwifery, College of Medicine and Health Sciences, University of Rwanda, Remera Campus, Kigali, Rwanda.

出版信息

Rwanda J Med Health Sci. 2023 Nov 30;6(3):411-422. doi: 10.4314/rjmhs.v6i3.14. eCollection 2023 Nov.

Abstract

BACKGROUND

Palliative care is a holistic approach aimed at improving the quality of life for patients with advanced chronic diseases by providing physical, emotional, and spiritual support. communication is crucial during every stage of an illness to ensure that patients wishes are respected. This scoping review aimed to explore the literature on experiences of patients with advanced chronic disease transitioning to palliative care in low- and middle-income countries.

METHODOLOGY

This review was guided by Arksey and O'Malley's scoping review framework. A systematic search of the literature was conducted in MEDLINE, PubMed, Cochrane Library, PsycINFO, and Google Scholar from 2012 to 2022. thematic analysis was utilized to construct themes.

RESULTS

The review identified key themes concerning the transition of people with advanced chronic diseases to palliative care in LMICs, including poor understanding, uncertainty, need for support, and poor communication.

CONCLUSION

This review offers valuable insights into the experiences of patients transitioning to palliative care, aiding in the development of more effective interventions for researchers, clinicians, and policymakers.

摘要

背景

姑息治疗是一种整体治疗方法,旨在通过提供身体、情感和精神支持来提高晚期慢性病患者的生活质量。在疾病的每个阶段,沟通都至关重要,以确保患者的意愿得到尊重。本范围综述旨在探讨中低收入国家晚期慢性病患者向姑息治疗过渡的相关文献。

方法

本综述以阿克西和奥马利的范围综述框架为指导。2012年至2022年期间,在医学期刊数据库(MEDLINE)、医学期刊数据库(PubMed)、考克兰图书馆、心理学文摘数据库(PsycINFO)和谷歌学术上对文献进行了系统检索。采用主题分析法构建主题。

结果

该综述确定了中低收入国家晚期慢性病患者向姑息治疗过渡的关键主题,包括理解不足、不确定性、支持需求和沟通不畅。

结论

本综述为向姑息治疗过渡的患者的经历提供了有价值的见解,有助于为研究人员、临床医生和政策制定者制定更有效的干预措施。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d339/12110501/d9acd622b9e2/RJMHS0603-0411Fig1.jpg

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