Blum Moritz, Weber-Krüger Mark, Abdul-Khaliq Hashim, Alt-Epping Bernd, Dittrich Marc, Henking Tanja, Neitzke Gerald, Rittger Harald, Stanze Henrikje, Knappe Dorit, Witte Klaus K, Dutzmann Jochen, Goss Franz
Klinik für Thorax‑, Herz- und Gefäßchirurgie, Deutsches Herzzentrum der Charité (DHZC) - Medical Heart Center of Charité and German Heart Institute Berlin, Berlin, Deutschland.
Charité - Universitätsmedizin Berlin, corporate member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Deutschland.
Herz. 2025 Jun 26. doi: 10.1007/s00059-025-05325-x.
Palliative care is a crucial part of the holistic management of advanced heart failure; however, it remains unclear how palliative care is currently provided in the outpatient sector in Germany.
We conducted a survey among office-based cardiologists and general practitioners (GPs) in Germany on the current provision of palliative care for people with advanced heart failure. The survey was developed by a multiprofessional project group of the German Cardiac Society (DGK e. V.) and administered online by the National Association of Office-Based Cardiologists (BNK e.V.).
A total of 235 individuals participated in the study. The majority of respondents reported frequently or always discussing goals of care with patients with advanced heart failure. The GPs reported significantly more often than cardiologists that they always or frequently address primary palliative care needs. None of the surveyed office-based cardiologists but 35.1% of GPs stated that they frequently or always prescribe specialized outpatient palliative care (SAPV) for patients with advanced heart failure. Over 90% of the cardiologists reported that they rarely or never continue to care for patients when they cannot come to the practice themselves.
Only few office-based physicians in Germany regularly refer patients with advanced heart failure to specialized palliative care services. Primary palliative care and the involvement of SAPV are significantly more often managed by GPs than by office-based cardiologists.
姑息治疗是晚期心力衰竭整体管理的关键部分;然而,目前德国门诊部门如何提供姑息治疗仍不清楚。
我们对德国的门诊心脏病专家和全科医生就晚期心力衰竭患者的姑息治疗现状进行了一项调查。该调查由德国心脏病学会(DGK e.V.)的一个多专业项目组制定,并由全国门诊心脏病专家协会(BNK e.V.)在线管理。
共有235人参与了该研究。大多数受访者报告经常或总是与晚期心力衰竭患者讨论护理目标。全科医生报告总是或经常满足初级姑息治疗需求的频率显著高于心脏病专家。在接受调查的门诊心脏病专家中,没有人表示经常或总是为晚期心力衰竭患者开专门的门诊姑息治疗(SAPV)处方,但35.1%的全科医生这样表示。超过90%的心脏病专家报告说,当患者无法亲自前来就诊时,他们很少或从不继续为其提供护理。
在德国,只有少数门诊医生会定期将晚期心力衰竭患者转介到专门的姑息治疗服务机构。与门诊心脏病专家相比,初级姑息治疗和SAPV的参与更多地由全科医生负责。