Saito Norimitsu, Kamei Kazumasa, Gautier Genevieve, Kurosky Samantha K, Hanson Kent A, Bell Griffith, Lee Lulu, Sternbach Nikoletta, Yuasa Akira
Nagomi Dermatology Clinic, Kanagawa, Japan.
Pfizer Japan Inc., Tokyo, Japan.
J Dermatol. 2025 Aug;52(8):1255-1262. doi: 10.1111/1346-8138.17831. Epub 2025 Jun 27.
Alopecia areata (AA) is a common disorder that causes hair loss and can significantly impact quality of life, which may be partially due to AA-related stigma. Examining the impact of AA on psychosocial health is important for understanding the burden experienced by patients with AA. The primary objective of this study was to examine mental health and sleep conditions, hair growth satisfaction, and AA-related stigma perceptions among individuals diagnosed with AA in Japan. The study used patients' self-reported data collected from the National Health and Wellness Survey conducted in Japan in 2023. Collected data included demographic characteristics and comorbidities; among those with a self-reported clinical diagnosis of AA, additional information on clinical characteristics, treatments, and perceived AA-related stigma was captured. Results were analyzed and stratified by self-assessed disease severity. Among the full sample (30 013 adults living in Japan), 471 respondents reported a clinical diagnosis of AA, including 347 mild cases, 100 moderate cases, and 24 severe cases. A diagnosed mental health disorder in the past year was reported by 57 respondents (12.1%), and 67 (14.2%) reported a diagnosed sleep condition in the past year. Less than half of respondents (47.4%) were satisfied with their current hair growth, and satisfaction decreased with increasing disease severity. Overall, 70.3% of respondents reported feelings of embarrassment, 55.0% felt that others judged them negatively, and 50.3% felt that others treated them negatively due to AA. A higher proportion of respondents with a severe case (54.2%) reported feeling embarrassed to have AA "very much so" compared with respondents who had mild (15.3%) or moderate (26.0%) cases. Perceived AA-associated stigma increased with disease severity. Overall, this study demonstrated the prevalence of AA-related disease stigma and mental health conditions among individuals with AA living in Japan, underscoring the importance of mental health support for patients with AA.
斑秃(AA)是一种常见的导致脱发的疾病,会对生活质量产生重大影响,这可能部分归因于与AA相关的污名。研究AA对心理社会健康的影响对于了解AA患者所承受的负担很重要。本研究的主要目的是调查日本被诊断为AA的个体的心理健康和睡眠状况、头发生长满意度以及与AA相关的污名认知。该研究使用了从2023年在日本进行的全国健康与福祉调查中收集的患者自我报告数据。收集的数据包括人口统计学特征和合并症;在那些自我报告临床诊断为AA的患者中,还获取了有关临床特征、治疗方法以及感知到的与AA相关的污名的额外信息。结果根据自我评估的疾病严重程度进行分析和分层。在整个样本(居住在日本的30013名成年人)中,471名受访者报告临床诊断为AA,其中包括347例轻度病例、100例中度病例和24例重度病例。57名受访者(12.1%)报告在过去一年中被诊断患有精神疾病,67名(14.2%)报告在过去一年中被诊断患有睡眠疾病。不到一半的受访者(47.4%)对当前的头发生长情况感到满意,并且满意度随着疾病严重程度的增加而降低。总体而言,70.3%的受访者表示感到尴尬,55.0%的人觉得他人对他们有负面评价,50.3%的人觉得他人因AA而对他们有负面对待。与轻度(15.3%)或中度(26.0%)病例的受访者相比,重度病例的受访者中更高比例(54.2%)报告“非常”因患有AA而感到尴尬。感知到的与AA相关的污名随着疾病严重程度的增加而增加。总体而言,本研究证明了在居住在日本的AA患者中与AA相关的疾病污名和心理健康状况的普遍性,强调了为AA患者提供心理健康支持的重要性。