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完善我们的“CRAFT”:促进代表性的社区研究学院(CRAFT)项目。

Refining Our "CRAFT": The Community Research Academy to Foster RepresenTation (CRAFT) Program.

作者信息

Fowler Mackenzie E, Akinyele Oluseun, Walton Francine, Wallace Rochelle, Ingram Stacey A, Schoenberger Yu-Mei, Niranjan Soumya J, Samant Ritika R, Hardy Claudia, Gisiger-Camata Silvia, Nolan Timiya S

机构信息

Department of Epidemiology, School of Public Health, University of Alabama at Birmingham, AL, USA.

Office of Community Outreach and Engagement, O'Neal Comprehensive Cancer Center at the University of Alabama at Birmingham, AL, USA.

出版信息

Cancer Control. 2025 Jan-Dec;32:10732748251355153. doi: 10.1177/10732748251355153. Epub 2025 Jun 28.

Abstract

IntroductionClinical research participation is under-represented among minoritized groups (eg, Black Americans) leading to suboptimal generalizability of findings and likely propagating inequities in cancer outcomes. Offices of Community Outreach and Engagement at comprehensive cancer centers establish bidirectional relationships between institutions and communities to facilitate catchment-concordant clinical research. We describe a program to educate and empower community health workers (CHWs) to act as clinical research advocates within their communities.MethodsAcademic and community stakeholders adapted existing evidence-based educational materials addressing importance of clinical research. The resulting program was entitled Community Research Academy to Foster RepresenTation (CRAFT). CRAFT is a 3-hour "train the trainer" session including introduction to clinical trials with "myth busters", "Ask the Participant" panel, and hands-on experience finding a clinical trial. CRAFT was evaluated for acceptability, change in knowledge/perception, maintenance, and suggestions for curriculum improvement.ResultsTraining was held in December 2023 with 21 CHWs, with a refresher training in July 2024 with 19 CHWs. At initial training, all participants reported 'excellent' or 'good' satisfaction with CRAFT. Results indicate 48% reported increased knowledge and 33% improved perception, and 21% demonstrated increased objective knowledge of clinical trials. At refresher training, 94% reported 'excellent' or 'good' satisfaction with CRAFT, 47% reported increased knowledge and 73% increased objective knowledge of clinical trials. Of those completing both sessions and all objective knowledge questions, 50% maintained or improved their score. Qualitative feedback indicated need for additional training (eg, more testimonials, more facts to supplement "myth busting", more trainings, additional information on how to present to the public, and collaboration with academic health system staff during future CHW-facilitated programs).ConclusionCRAFT increased awareness, knowledge, and perception of clinical research among diverse CHWs with maintenance over time. Next steps include refining CRAFT, administering CRAFT to volunteer community health advisors, continuing evaluation, and sharing with other institutions.

摘要

引言

在少数族裔群体(如美国黑人)中,参与临床研究的人数不足,这导致研究结果的普遍性欠佳,并可能加剧癌症治疗结果的不平等。综合癌症中心的社区外展与参与办公室在机构与社区之间建立双向关系,以促进与社区情况相契合的临床研究。我们描述了一个项目,旨在教育和赋能社区卫生工作者(CHW),使其在所在社区中担任临床研究倡导者。

方法

学术和社区利益相关者改编了现有的基于证据的教育材料,阐述临床研究的重要性。由此产生的项目名为“促进代表性的社区研究学院”(CRAFT)。CRAFT是一个为期3小时的“培训培训师”课程,包括通过“破除迷思”环节介绍临床试验、“向参与者提问”小组讨论,以及寻找临床试验的实践经验。对CRAFT进行了可接受性、知识/认知变化、维持情况以及课程改进建议等方面的评估。

结果

培训于2023年12月举行,有21名社区卫生工作者参加,2024年7月进行了一次复习培训,有19名社区卫生工作者参加。在初始培训时,所有参与者对CRAFT的满意度均为“优秀”或“良好”。结果显示,48%的人报告知识有所增加,33%的人认知有所改善,21%的人对临床试验的客观知识有所增加。在复习培训时,94%的人对CRAFT的满意度为“优秀”或“良好”,47%的人报告知识有所增加,73%的人对临床试验的客观知识有所增加。在完成两个课程以及所有客观知识问题的人中,50%保持或提高了他们的分数。定性反馈表明需要额外的培训(例如,更多的推荐案例、更多补充“破除迷思”的事实、更多培训、关于如何向公众介绍的更多信息,以及在未来由社区卫生工作者推动的项目中与学术健康系统工作人员合作)。

结论

CRAFT提高了不同社区卫生工作者对临床研究的认识、知识和认知,并随着时间推移得以维持。下一步包括完善CRAFT,向志愿社区健康顾问提供CRAFT培训,持续进行评估,并与其他机构分享。

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The unspoken benefit of participation in a clinical trial.参与临床试验的隐性益处。
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