Souza Rebeca Rosa de, Barreto Mayckel da Silva, Teston Elen Ferraz, Wernet Monika, Silva Maria Eduarda Pascoaloto da, Cardoso Alexandrina Maria Ramos, Marcon Sonia Silva
Universidade Estadual do Paraná, Departamento de Enfermagem, Paranavaí, PR, Brazil.
Universidade Federal do Mato Grosso do Sul, Departamento de Enfermagem, Campo Grande, MS, Brazil.
Rev Esc Enferm USP. 2025 Jul 7;59:e20240413. doi: 10.1590/1980-220X-REEUSP-2024-0413en. eCollection 2025.
To construct a substantive theory about the meanings attributed to the experience of pregnancy by women with Systemic Lupus Erythematosus.
Qualitative study using Symbolic Interactionism as a theoretical framework, and Grounded Theory, a constructivist approach, as a methodological framework. Data collection took place between January and August 2022 through in-depth interviews, which were video and audio-recorded and carried out remotely. The theoretical sample consisted of 27 participants, distributed into four sample groups.
From constant comparative analysis the central phenomenon was constructed: Understanding reproductive planning as the key to the gestational process in Systemic Lupus Erythematosus, consisting of two categories, which show divergent experiences and meanings based on whether or not the pregnancy was planned.
Personal interaction with the phenomenon, based or not on the "pillars" of reproductive planning, and social interaction with the multidisciplinary health team reflect on the way the woman perceives, behaves, and gives meaning to pregnancy. Thus, it is reiterated that reproductive planning is considered the key to gestational outcome in SLE.
构建一个关于系统性红斑狼疮女性对妊娠经历赋予意义的实质性理论。
采用符号互动主义作为理论框架，扎根理论（一种建构主义方法）作为方法框架进行定性研究。2022年1月至8月期间，通过深入访谈收集数据，访谈进行了视频和音频录制且为远程进行。理论样本由27名参与者组成，分为四个样本组。
通过持续比较分析构建了核心现象：将生殖规划理解为系统性红斑狼疮妊娠过程的关键，由两类组成，根据妊娠是否为计划内显示出不同的经历和意义。
基于或不基于生殖规划“支柱”的与该现象的个人互动，以及与多学科健康团队的社会互动，反映了女性对妊娠的认知、行为方式以及赋予妊娠的意义。因此，重申生殖规划被认为是系统性红斑狼疮妊娠结局的关键。
