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一项关于学龄儿童语言和学习障碍相关的观察到的和感知到的功能影响的范围综述。

A Scoping Review of the Observed and Perceived Functional Impacts Associated With Language and Learning Disorders in School-Aged Children.

作者信息

Perichon Jérémy, Paul Marianne J, Chabanal Damien, Maïonchi-Pino Norbert

机构信息

Laboratoire de Recherche sur le Langage (UR 999), Université Clermont Auvergne, Clermont-Ferrand, France.

Département d'orthophonie, Université du Québec à Trois-Rivières, Trois-Rivières, Canada.

出版信息

Int J Lang Commun Disord. 2025 Jul-Aug;60(4):e70086. doi: 10.1111/1460-6984.70086.

DOI:10.1111/1460-6984.70086
PMID:40653909
Abstract

BACKGROUND

Assessing children with Developmental Language Disorder (DLD) and Specific Learning Disabilities (SLD) requires a clear understanding of how these conditions impact their daily lives. However, existing assessment tools are not systematically grounded in a theoretical framework, and there is a lack of consensus regarding the relevant dimensions and indicators to be evaluated. Notably, the concepts of functional impact and functional impairment-which are essential for identifying needs, informing clinical decision-making and tailoring interventions-remain poorly defined and are frequently used interchangeably, even though they refer to distinct aspects of functioning. This conceptual ambiguity hinders the development of consistent, theory-based assessment models and contributes to inconsistencies across both research and clinical settings.

AIMS

The study aims to describe and clarify the concepts of 'functional impact' and 'functional impairment,' as well as to identify and classify the leading dimensions and indicators used to measure the functional consequences of DLD and SLD in school-aged children.

METHODS AND PROCEDURES

A scoping review was performed on a systematic search of studies published between January 2013 and November 2023 across six databases (Medline, PsycINFO, CINAHL, ERIC, Psychology & Behavioural Science Collection and Education Source). In total, 1950 documents were reviewed using predefined eligibility criteria, resulting in 53 documents being included for the final data extraction. The analysis followed a qualitative approach, combining both inductive and deductive analyses. An inductive approach was used to develop a new conceptual framework (definitions and classification system), while a deductive approach was applied to organise the identified dimensions and indicators into five overarching categories.

MAIN CONTRIBUTION

There is notable variability in the terminology used to describe functional impact and functional impairment, as well as ambiguity surrounding their respective meanings. Using an iterative lexicographical approach, we established operational definitions, distinguishing between two subcategories of functional consequences: observed and perceived functional impacts. This conceptual distinction enhances the clarity and applicability of these constructs in both research and clinical settings. Furthermore, five major categories were identified to guide the assessment of the functional impacts: individual abilities, personal factors, daily and meaningful activities, social relationships and environmental factors. Each category encompasses a range of dimensions and indicators. Based on these findings, we propose a structured and integrated framework: the Observed and Perceived Functional Impacts (OPFI) model for assessing functional consequences.

CONCLUSIONS AND IMPLICATIONS

Distinguishing between observed and perceived functional impacts provides a clearer and more comprehensive understanding of children's needs. This differentiation supports more targeted and effective clinical recommendations aimed at enhancing their communication skills, daily and meaningful activities, social relationships and overall quality of life. The proposed theoretical framework offers a clear conceptual framework for speech-language pathologists and other healthcare and educational professionals in shaping evaluation and intervention practices. This framework could be used to develop assessment tools aimed at assessing children's real-life functioning.

WHAT THIS PAPER ADDS

What is already known on this subject DLD and SLD significantly affect children's daily lives, particularly communication, social relationships and academic success. To design interventions tailored to each child's needs, it is crucial to accurately understand and measure these impacts effectively. However, the current terminology used to describe these impacts and the available assessment methods vary widely, leading to uncertainties about what should be evaluated for clinicians. What this paper adds to existing knowledge The scoping review results allow us to disentangle the concepts of 'observed' and 'perceived' functional impacts of language and learning disorders by providing explicit definitions of these two concepts. Key dimensions and indicators were identified for both observed and perceived functional impacts. We propose a structured model based on these dimensions and indicators: Observed and Perceived Functional Impacts (OPFI) model. Considering its dynamic nature, this model will facilitate a more systematic assessment of the functional consequences for children with language or learning disorders. What are the potential or actual clinical implications of this work? Given the limitations of standardised tests, enhancing speech-language assessments by integrating observations from parents, teachers, and other professionals is essential to comprehensively understand the child's strengths, challenges and needs. Focusing on the functional impacts of disorders-such as social interaction, daily activities and adaptation to school and family environments-refines intervention plans adapted to the child's specific needs and enables more precise monitoring of their progress. Including the child's perspective from an early age through well-suited self-report questionnaires or open-ended questions during clinical interviews supports a better understanding of their experiences and perceptions of the disorder.

摘要

背景

评估患有发育性语言障碍(DLD)和特定学习障碍(SLD)的儿童需要清楚了解这些病症如何影响他们的日常生活。然而,现有的评估工具并非系统地基于理论框架,并且在要评估的相关维度和指标方面缺乏共识。值得注意的是,功能影响和功能损害的概念——这对于确定需求、为临床决策提供信息以及定制干预措施至关重要——仍然定义不明确,并且经常互换使用,尽管它们指的是功能的不同方面。这种概念上的模糊性阻碍了基于理论的一致评估模型的发展,并导致研究和临床环境中的不一致。

目的

本研究旨在描述和澄清“功能影响”和“功能损害”的概念,以及识别和分类用于衡量学龄儿童DLD和SLD功能后果的主要维度和指标。

方法和程序

对2013年1月至2023年11月期间在六个数据库(Medline、PsycINFO、CINAHL、ERIC、心理学与行为科学合集和教育源)中发表的研究进行系统检索,并进行范围综述。总共使用预定义的纳入标准审查了1950份文件,最终有53份文件被纳入进行数据提取。分析采用定性方法,结合归纳和演绎分析。归纳方法用于开发一个新的概念框架(定义和分类系统),而演绎方法用于将识别出的维度和指标组织成五个总体类别。

主要贡献

用于描述功能影响和功能损害的术语存在显著差异,并且它们各自的含义也存在模糊性。通过迭代词典编纂方法,我们建立了操作定义,区分了功能后果的两个子类别:观察到的功能影响和感知到的功能影响。这种概念上的区分提高了这些结构在研究和临床环境中的清晰度和适用性。此外,确定了五个主要类别以指导对功能影响的评估:个人能力、个人因素、日常和有意义的活动、社会关系以及环境因素。每个类别都包含一系列维度和指标。基于这些发现,我们提出了一个结构化和综合的框架:观察到的和感知到的功能影响(OPFI)模型,用于评估功能后果。

结论和启示

区分观察到的和感知到的功能影响能够更清晰、更全面地理解儿童的需求。这种区分支持更有针对性和有效的临床建议,旨在提高他们的沟通技能、日常和有意义的活动、社会关系以及整体生活质量。所提出的理论框架为言语语言病理学家以及其他医疗保健和教育专业人员塑造评估和干预实践提供了一个清晰的概念框架。这个框架可用于开发旨在评估儿童现实生活功能的评估工具。

本文补充了什么

关于这个主题已知的内容 DLD和SLD显著影响儿童的日常生活,特别是沟通、社会关系和学业成就。为了设计适合每个孩子需求的干预措施,准确理解并有效测量这些影响至关重要。然而,目前用于描述这些影响的术语和可用的评估方法差异很大,这给临床医生在应该评估什么方面带来了不确定性。本文对现有知识的补充 范围综述结果使我们能够通过提供这两个概念的明确定义来理清语言和学习障碍的“观察到的”和“感知到的”功能影响的概念。确定了观察到的和感知到的功能影响的关键维度和指标。我们基于这些维度和指标提出了一个结构化模型:观察到并感知到的功能影响(OPFI)模型。考虑到其动态性质,这个模型将有助于更系统地评估语言或学习障碍儿童的功能后果。这项工作的潜在或实际临床意义是什么?鉴于标准化测试的局限性,通过整合来自家长、教师和其他专业人员的观察来加强言语语言评估对于全面了解孩子的优势、挑战和需求至关重要。关注障碍的功能影响——如社会互动、日常活动以及对学校和家庭环境的适应——完善了适合孩子特定需求的干预计划,并能够更精确地监测他们的进展。从早期就通过合适的自我报告问卷或临床访谈中的开放式问题纳入孩子的观点,有助于更好地理解他们对障碍的经历和看法。

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Recognizing and Resisting Ableist Language in Schools: Suggestions for School-Based Speech-Language Pathologists and Related Professionals.识别和抵制学校中的歧视性语言:为学校言语治疗师和相关专业人员提供的建议。
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