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“人们打电话是因为他们感到害怕”:一项关于临终时在家中获得及时响应护理影响的现实主义评价的结果。

'People ring because they're frightened': findings from a realist evaluation on the impact of timely responsive care at home at the end of life.

作者信息

McEwan Kathryn, Atkinson Joanne, Clarke Amanda, Bate Angela, Jeffery Caroline, Dalkin Sonia

机构信息

University of Northumbria, Newcastle upon Tyne, England.

出版信息

BMC Palliat Care. 2025 Jul 14;24(1):199. doi: 10.1186/s12904-025-01826-y.

DOI:10.1186/s12904-025-01826-y
PMID:40660144
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12261533/
Abstract

BACKGROUND

Rapid response services (RRS) support patients who wish to die at home, providing flexible, timely, and specialist care. These services are regionally variable yet are valued by patients and caregivers in often uncertain end-of-life situations. Research on their effectiveness and implementation to date is limited. This study explores how RRS are experienced in practice and identifies key contexts and mechanisms underpinning their impact.

OBJECTIVES

This study aimed to understand how different service models of RRS function, who they work for, how and why. By exploring patient, caregiver, and staff perspectives, we sought to refine programme theories and provide evidence-based recommendations for service improvement and policy development.

DESIGN

A realist evaluation approach was used to examine how, why, and in what contexts RRS provide end-of-life care. Through iterative theory development and refinement, we identified key generative mechanisms and the contexts in which they trigger outcomes.

METHODS

Qualitative data were collected via realist theory driven semi-structured focus groups and interviews with 36 participants across two sites, each operating a distinct RRS model. Data were analysed using a retroductive context-mechanism-outcome (CMO) framework and informed by Transitions Theory.

RESULTS

Six programme theories were developed, highlighting the central role of continuity of care in enabling positive end-of-life experiences. A sense of 'being known' by RRS staff facilitated smooth transitions, reduced distress, and fostered trust. Timely, responsive care, particularly at night, was valued, whereas gatekeeping, fragmented service models, and inequities in access (especially for non-cancer patients) created barriers.

CONCLUSIONS

Patients and caregivers valued holistic, relationship-centred care that provided emotional security alongside practical support. However, service inconsistencies, late transitions into palliative care, and systemic inequities limit accessibility. Findings highlight the need for early engagement, integrated service models, and 24/7 specialist care, ensuring greater continuity and equity in home-based end-of-life care.

摘要

背景

快速反应服务(RRS)为希望在家中离世的患者提供支持,提供灵活、及时且专业的护理。这些服务在地区上存在差异,但在往往不确定的临终情况下受到患者和护理人员的重视。迄今为止,关于其有效性和实施情况的研究有限。本研究探讨了RRS在实际中的体验方式,并确定了支撑其影响的关键背景和机制。

目的

本研究旨在了解RRS的不同服务模式如何运作、服务对象是谁、如何运作以及为何如此。通过探索患者、护理人员和工作人员的观点,我们试图完善项目理论,并为服务改进和政策制定提供基于证据的建议。

设计

采用现实主义评估方法来研究RRS在何种情况下、为何以及如何提供临终护理。通过迭代的理论发展和完善,我们确定了关键的生成机制以及它们触发结果的背景。

方法

通过现实主义理论驱动的半结构化焦点小组和对两个地点的36名参与者进行访谈收集定性数据,每个地点都采用不同的RRS模式。使用逆向推理的背景-机制-结果(CMO)框架对数据进行分析,并以转变理论为依据。

结果

形成了六个项目理论,突出了护理连续性在实现积极临终体验中的核心作用。RRS工作人员的“被了解感”有助于顺利过渡、减轻痛苦并增进信任。及时、响应迅速的护理,尤其是在夜间,受到重视,而把关、分散的服务模式以及获取服务的不平等(特别是对非癌症患者而言)则造成了障碍。

结论

患者和护理人员重视以整体、关系为中心的护理,这种护理在提供实际支持的同时给予情感安全感。然而,服务的不一致性、晚期过渡到姑息治疗以及系统性不平等限制了可及性。研究结果强调需要早期介入、综合服务模式以及全天候专业护理,以确保在家中临终护理方面有更大的连续性和公平性。

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本文引用的文献

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Mechanism-Based Middle-Range Theories: Using Realist Syntheses to Reconcile Specificity to Context and Generalizability.基于机制的中程理论:运用实在论综合法调和情境特异性与可推广性
Qual Health Res. 2025 Mar 12:10497323251316401. doi: 10.1177/10497323251316401.
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Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study.建立信任关系作为姑息治疗中存在主义对话前提条件的跨学科策略:一项扎根理论研究
BMC Palliat Care. 2025 Feb 19;24(1):47. doi: 10.1186/s12904-025-01681-x.
3
Caring toward end of life through acute hospital and community partnerships: A scoping review.通过急症医院与社区合作实现临终关怀:一项范围综述
Palliat Med. 2025 Mar;39(3):346-357. doi: 10.1177/02692163241310692. Epub 2025 Feb 14.
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" I can't do it anymore": a qualitative study on the emergence of crisis in outpatient palliative care-the perspective of family caregivers.“我再也做不到了”:一项关于门诊姑息治疗中危机出现的定性研究——家庭照顾者的视角
BMC Palliat Care. 2025 Feb 11;24(1):39. doi: 10.1186/s12904-025-01664-y.
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'Regrets become a lasting source of pain': A qualitative study on family caregivers' experiences leading up to a relative's death.“遗憾成为痛苦的持久源头”:一项关于家庭照顾者在亲人去世前经历的定性研究。
Palliat Med. 2025 Mar;39(3):401-412. doi: 10.1177/02692163251316677. Epub 2025 Feb 10.
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Providing 'professionalism with compassion'; how the time for caring communication can improve experiences at the end-of-life at home, findings from a realist evaluation.提供“带着同情心的专业精神”;关怀性沟通的时机如何改善居家临终体验,一项现实主义评价的结果
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