Arikan Bilgen, Sardagi Emine, Erdem Cigdem
Faculty of Health Sciences, Department of Nursing, Usak University, Usak, Türkiye.
Faculty of Communication, Department of Public Relations and Advertising, Usak University, Usak, Türkiye.
BMC Nephrol. 2025 Jul 17;26(1):397. doi: 10.1186/s12882-025-04331-9.
Recent years have seen an increase in internet and social media usage, with individuals turning to these platforms for health-related information. Kidney transplant recipients and candidates are among those who actively engage in sharing their experiences and seeking information online. This study aims to identify the information needs of kidney transplant candidates and recipients based on their social media posts.
A qualitative research design was adopted, focusing on Facebook groups related to kidney transplantation in Türkiye. A total of 496 posts from four active groups, shared between January 1 and December 31, 2023, were analyzed. The data were examined through an inductive approach, where initial codes were developed to identify key themes and sub-themes. Content analysis was used in the evaluation of the data.
Content analysis of 496 posts revealed four major themes: (i) "Encountered Problems," (ii) "Medical Information," (iii) "Organ Need," and (iv) "Procedure." In addition, seventeen sub-themes related to the main themes were identified. The majority of posts belonged to the "Encountered Problems" theme, with the highest number of shares concerning physiological issues. The most frequently shared posts were physiological symptoms, difficulties accessing medications, and emotional distress, especially in relation to transplantation complications and post-operative challenges. Posts also showed a strong demand for medical guidance (e.g., physician recommendations, post-transplant care, nutrition), while ethical concerns, organ donor searches, and procedural uncertainties (e.g. patient selection criteria, retirement prosedure) were also common.
The Individuals who have undergone kidney transplantation or are waiting for transplantation need information on many different physiological and psycho-social issues. Social media has emerged as an important platform where these needs are expressed and peer support is provided. These findings suggest the necessity of implementing personalized education programs for patients and their families and expanding remote care practices such as telehealth services (e.g., tele-nursing and online counseling).
Not applicable.
近年来，互联网和社交媒体的使用有所增加，人们开始转向这些平台获取与健康相关的信息。肾移植受者和候选者是积极在网上分享自身经历并寻求信息的人群之一。本研究旨在根据肾移植候选者和受者在社交媒体上的帖子确定他们的信息需求。
采用定性研究设计，重点关注土耳其与肾移植相关的脸书群组。分析了2023年1月1日至12月31日期间四个活跃群组共496条帖子。通过归纳法对数据进行检查，制定初始编码以识别关键主题和子主题。在数据评估中使用了内容分析法。
对496条帖子的内容分析揭示了四个主要主题：（i）“遇到的问题”，（ii）“医学信息”，（iii）“器官需求”，以及（iv）“程序”。此外，还确定了与主要主题相关的十七个子主题。大多数帖子属于“遇到的问题”主题，其中关于生理问题的分享数量最多。分享最频繁的帖子是生理症状、获取药物困难和情绪困扰，特别是与移植并发症和术后挑战相关的。帖子还显示出对医学指导（如医生建议、移植后护理、营养）的强烈需求，而伦理问题、器官捐赠者搜索和程序不确定性（如患者选择标准、退休程序）也很常见。
接受过肾移植或正在等待移植的个体需要有关许多不同生理和心理社会问题的信息。社交媒体已成为表达这些需求并提供同伴支持的重要平台。这些发现表明有必要为患者及其家属实施个性化教育计划，并扩大远程护理实践，如远程医疗服务（如远程护理和在线咨询）。
不适用。
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