唐氏综合征患儿且有睡眠问题的照料者的生活质量与心理健康
Quality of Life and Mental Health in Caregivers of Children With Down Syndrome and Sleep Problems.
作者信息
Fullwood Kasey, Collaro Andrew, Power Lachlan, Chawla Jasneek
机构信息
Child Health Research Centre, the University of Queensland, South Brisbane, Australia.
Department of Respiratory and Sleep Medicine, Queensland Children's Hospital, South Brisbane, Australia.
出版信息
J Appl Res Intellect Disabil. 2025 Jul;38(4):e70103. doi: 10.1111/jar.70103.
INTRODUCTION
Children with Down Syndrome are more likely to experience sleep issues throughout their life compared to typically developing children. Sleep difficulties also affect caregivers, who are at increased risk of sleep disturbances, mood disturbances and poorer wellbeing. However, the impact of poor sleep in this cohort of children on their caregivers is not widely understood.
METHOD
This study assessed the quality of life and mental health in 26 caregivers of children with Down Syndrome and sleep problems through two self-reporting questionnaires.
RESULTS
Results showed caregivers had significantly lower quality of life (QoL) and higher stress scores compared to population norms. A decrease in psychological and physical health scores was associated with higher odds of depression. Similarly, a reduced physical and social health increased the odds of experiencing stress by 50%.
CONCLUSION
These findings suggest this cohort of families may benefit from increased psychosocial support when addressing sleep problems.
引言
与发育正常的儿童相比，唐氏综合征患儿一生中更有可能出现睡眠问题。睡眠困难也会影响照顾者，他们出现睡眠障碍、情绪障碍和健康状况较差的风险更高。然而，这一儿童群体睡眠不佳对其照顾者的影响尚未得到广泛了解。
方法
本研究通过两份自我报告问卷评估了26名患有唐氏综合征且有睡眠问题的儿童的照顾者的生活质量和心理健康状况。
结果
结果显示，与总体标准相比，照顾者的生活质量显著较低，压力得分较高。心理和身体健康得分的下降与患抑郁症的几率较高有关。同样，身体和社会健康状况的下降使经历压力的几率增加了50%。
结论
这些发现表明，在解决睡眠问题时，这一群体的家庭可能会从增加的心理社会支持中受益。
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