Koh Wei Qi, Roes Martina, de Vugt Marjolein, Sezgin Duygu, Gonçalves-Pereira Manuel, Müller Nicole, Diaz Ana, Casey Dympna, Ingram Chantal, Walden Amy Kate, Thyrian Jochen René, Neal David, Comas Adelina, Hopper Louise
School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia.
German Center for Neurodegenerative Diseases (DZNE), Witten, Germany.
Aging Ment Health. 2025 Jul 23:1-20. doi: 10.1080/13607863.2025.2534406.
To examine through a social health lens the unmet needs of people affected by dementia, which includes people with dementia, their informal and formal (or professional) caregivers. 'Unmet needs' was conceptualised as inaccessible or a lack of appropriate interventions to address identified problems.
A scoping review of reviews was conducted. Five electronic databases were searched, followed by a two-stage-screening process. Data were extracted into a standardised sheet comprising study characteristics and domains from the Camberwell Assessment of Needs for the Elderly (CANE), and narratively synthesised. Unmet needs of people with dementia were mapped onto a social health framework.
Eighty-five reviews were included. The most frequently reported unmet needs of people with dementia were related to psychological distress, lack of daytime activities, and company, all of which contribute to poorer social health. Informal caregivers most frequently reported a lack of information about the disease trajectory, post-diagnostic care, and home-based practical support. Formal caregivers had related information needs; their psychological distress stemmed from a range of sources.
This review of reviews provides a high-level synthesis of the unmet needs of people affected by dementia. It underscores fundamental knowledge gaps and shortcomings in existing interventions and services particularly for formal and informal caregivers.
从社会健康角度审视痴呆症患者（包括痴呆症患者本人、其非正式和正式（或专业）照料者）未得到满足的需求。“未得到满足的需求”被定义为无法获得或缺乏解决已确定问题的适当干预措施。
开展了一项综述的范围综述。检索了五个电子数据库，随后进行两阶段筛选过程。将数据提取到一张标准化表格中，该表格包含研究特征以及来自老年人坎伯韦尔需求评估（CANE）的领域，并进行叙述性综合分析。将痴呆症患者未得到满足的需求映射到一个社会健康框架上。
纳入了85篇综述。痴呆症患者最常报告的未得到满足的需求与心理困扰、缺乏日间活动和陪伴有关，所有这些都会导致社会健康状况较差。非正式照料者最常报告缺乏关于疾病发展轨迹、诊断后护理和家庭实际支持方面的信息。正式照料者有相关的信息需求；他们的心理困扰源于多种来源。
这项综述的范围综述对痴呆症患者未得到满足的需求进行了高层次的综合分析。它强调了现有干预措施和服务中存在的基本知识差距和不足，尤其是针对正式和非正式照料者的方面。
