McKay Nilufeur, Saunders Rosemary, Metcalfe Helene, Robinson Sue, Palamara Peter, Steer Kellie, Yoo Jeannie, Ranogajec Miles, Whitehead Lisa, Ewens Beverley
School of Nursing and Midwifery, Edith Cowan University, 270 Joondalup Drive, Joondalup, 6027, Australia, 61 863046116.
Ramsay Connect, Perth, Australia.
JMIR Cardio. 2025 Jul 23;9:e64877. doi: 10.2196/64877.
Heart failure is a prevalent and debilitating condition, affecting millions globally and imposing a significant burden on patients, families, and health care systems. Despite advancements in medical treatments, the gap in effective, continuous, and personalized supportive care remains glaringly evident. To address this pressing issue, virtual health care services delivered by interdisciplinary teams represent a promising solution. Understanding the outcomes and experience of remote monitoring-enabled interdisciplinary chronic disease management programs can inform resource allocation and health care policy decisions.
The purpose of this study was to evaluate the clinical and behavioral outcomes of patients undertaking a Virtual Home Health Heart Failure Program (VHHHFP) and explore the experiences of patients and health care practitioners (HCPs).
The VHHHFP is a virtual postdischarge support service for patients with heart failure that includes an intensive 3-month period followed by a maintenance period delivered by an interdisciplinary team. A mixed methods study was conducted with patients and HCPs. Self-reported outcome data (KCCQ-12 [Kansas City Cardiomyopathy Questionnaire-12], PHQ-4 [Patient Health Questionnaire-4], PAM-13 [Patient Activation Measure-13], and PREMs [Patient Reported Experience Measures]) were obtained from the records of patients (N=49) who completed the intensive phase of the VHHHFP, and interviews were conducted with patients (n=9) and HCPs (n=6). A paired t test was used to compare quantitative data before and after the 3-month intervention, and a thematic qualitative analysis was undertaken of interview data.
Thirty-one of the 55 (77.5%) patients completed the baseline and 3-month follow-up KCCQ-12 assessment. The mean KCCQ-12 summary score at 3 months was 72.20 (SD 20.2), which was significantly higher than the mean summary score at baseline of 50.51 (SD 17.59; P<.001). These findings were similar for the KCCCQ-12 subscales: physical limitations (mean 47.09, SD 29.7 and mean 69.43, SD 22.6; P<.001), quality of life (mean 43.75, SD 21.7 and mean 62.91, SD 25.7; P<.001), symptom frequency (median 60.40, IQR 1-100 and median 91.70, IQR 35.40; P<.001), and social limitation (median 50.0, IQR 1-100 and median 82.50, IQR 32.50; P<.001). The PHQ-4 measure of psychological health was completed by 32 (80%) patients. The median scores at baseline and follow-up for total distress (median 1.50, IQR 0-7 and median 0.0, IQR 0-8; P<.02), and the anxiety subscale (median 1.0, IQR 0-6 and median 0.0, IQR 0-4; P<.02) reduced over time. Six hospital admissions were recorded (10.2% of 49 patients) within 30 days. Nine patient interviews aligned with the value-based health care (VBHC) Capability, Comfort, and Calm (CCC) framework. Three themes were identified, which are as follows: (1) enhanced patient capability, (2) improved patient comfort, and (3) positive influences on calm. Six health care professionals shared experiences of the VHHHFP, with three emerging themes: (1) improved patient capability through shared decision-making, (2) improving capability through care practices, and (3) promoting comfort and calm through virtual coordination and collaboration.
The use of technologies to support the management of HF is an area of growth. This study contributes to the understanding of how remote patient monitoring with interdisciplinary chronic disease support, integrated into an existing system, can improve clinical outcomes for patients.
心力衰竭是一种普遍且使人衰弱的疾病,全球数百万人受其影响,给患者、家庭和医疗保健系统带来了沉重负担。尽管医学治疗取得了进展,但有效、持续和个性化支持性护理方面的差距仍然非常明显。为解决这一紧迫问题,跨学科团队提供的虚拟医疗服务是一个有前景的解决方案。了解启用远程监测的跨学科慢性病管理项目的结果和经验可为资源分配和医疗保健政策决策提供参考。
本研究的目的是评估参与虚拟家庭健康心力衰竭项目(VHHHFP)患者的临床和行为结果,并探索患者和医疗保健从业者(HCP)的体验。
VHHHFP是一项针对心力衰竭患者的虚拟出院后支持服务,包括为期3个月的强化期,随后是由跨学科团队提供的维持期。对患者和HCP进行了一项混合方法研究。从完成VHHHFP强化期的患者(N = 49)记录中获取自我报告的结果数据(堪萨斯城心肌病问卷-12 [KCCQ-12]、患者健康问卷-4 [PHQ-4]、患者激活量表-13 [PAM-13]和患者报告体验量表[PREMs]),并对患者(n = 9)和HCP(n = 6)进行了访谈。使用配对t检验比较3个月干预前后的定量数据,并对访谈数据进行主题定性分析。
55名患者中的31名(77.5%)完成了基线和3个月随访的KCCQ-12评估。3个月时KCCQ-12的平均总结评分为72.20(标准差20.2),显著高于基线时的平均总结评分50.51(标准差17.59;P <.001)。KCCCQ-12子量表的结果类似:身体限制(平均47.09,标准差29.7和平均69.43,标准差22.6;P <.001)、生活质量(平均43.75,标准差21.7和平均62.91,标准差25.7;P <.001)、症状频率(中位数60.40,四分位距1 - 100和中位数91.70,四分位距35.40;P <.001)和社会限制(中位数50.0,四分位距1 - 100和中位数82.50,四分位距32.