Ferretti Lisa A, Uhl Astrid, Zawacki Jessica, McCallion Philip
School of Social Work, Temple University, Philadelphia, PA 19122, USA.
ABA Centers of America, Fort Lauderdale, FL 33319, USA.
Children (Basel). 2025 Jun 27;12(7):850. doi: 10.3390/children12070850.
There is a need for more attention to the importance of substantial parent involvement in programming for autistic children in community-based care. More encouragement is needed to ensure that practitioners prioritize parental training and involvement throughout interventions, including practitioner-led in-home applied behavioral analysis (ABA) interventions. There has been little to no research on the feasibility and efficacy of adding parental training to in-home practitioner-led ABA interventions. This study is intended to begin the consideration of efficacy by reporting on a series of focus groups involving parents of autistic children and the Board Certified Behavioral Analysts (BCBAs) and Registered Behavior Technicians (RBTs) who work with them. Focus group meetings were conducted with a total of 18 participants: 7 family members, 5 RBTs, and 6 BCBAs drawn from two provider sites. Transcripts were generated, and data was analyzed using Braun & Clarke's reflexive thematic analysis, a method for analyzing and interpreting qualitative data that involves systematically generating codes in order to develop themes. The findings are described using three main themes: (1) barriers to family involvement in applied behavioral analysis programming, (2) facilitators of family involvement in applied behavioral analysis programming, and (3) recommendations for improving family involvement in applied behavioral analysis programming. There are logistical challenges in involving parents in in-home interventions when they occur in evening hours when the family has multiple other responsibilities. However, being in-home also presents opportunities not available in school or clinic settings. The recommendations provided offer an initial road map to advancing parent training components.
在社区护理中，需要更多地关注家长深度参与自闭症儿童项目规划的重要性。需要给予更多鼓励，以确保从业者在整个干预过程中优先考虑家长培训和参与，包括从业者主导的家庭应用行为分析（ABA）干预。关于在家庭中由从业者主导的ABA干预中增加家长培训的可行性和有效性，几乎没有相关研究。本研究旨在通过报告一系列焦点小组的情况来开始考虑其有效性，这些焦点小组的参与者包括自闭症儿童的家长以及与他们合作的行为分析师认证委员会（BCBA）成员和注册行为技术员（RBT）。焦点小组会议共有18名参与者，分别来自两个服务机构，包括7名家庭成员、5名RBT和6名BCBA。会议形成了文字记录，并使用布劳恩和克拉克的反思性主题分析法对数据进行了分析，这是一种分析和解释定性数据的方法，包括系统地生成代码以形成主题。研究结果通过三个主要主题进行描述：（1）家庭参与应用行为分析项目规划的障碍；（2）家庭参与应用行为分析项目规划的促进因素；（3）改善家庭参与应用行为分析项目规划的建议。当家庭在晚上进行家庭干预时，家长参与会面临后勤方面的挑战，因为此时家庭还有其他多项事务要处理。然而，家庭干预也带来了学校或诊所环境中所没有的机会。所提供的建议为推进家长培训内容提供了初步路线图。
