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让有心理障碍亲身经历的人参与进来:心理学领域社区参与式测量发展的当前研究与未来方向。

Engaging people with lived experience of psychological disorders: Current research and future directions for community-engaged measure development in psychological science.

作者信息

Boness Cassandra L, Hebden Hanna, Lardier David T, Spurgeon Liliana, Timmons Ashli, Simms Leonard J, Venner Kamilla L, Witkiewitz Katie

机构信息

University of New Mexico Center on Alcohol, Substance use, And Addictions.

University of New Mexico, Department of Psychology.

出版信息

Clin Psychol Sci. 2025 Jul;13(4):720-739. doi: 10.1177/21677026241304339. Epub 2025 Feb 5.

Abstract

The ability to make valid conclusions in psychological science rests upon rigorous measure development. People with lived experience of psychological disorders can make invaluable contributions to the measure development process, but they are often excluded from this process by researchers. When people with lived experience are included, their contributions are limited to consultation early in the process. This review advocates for shared decision-making with people with lived experience throughout the measure development process. We provide an overview of the phases and steps involved in the development of self-report measures, highlighting the critical contributions of people with lived experience at each step. Next, guided by the continuum of community engagement in research, we review studies from the psychological science literature that embrace community-engaged measure development approaches inclusive of people with lived experience of psychological disorders. We conclude with a discussion of opportunities and challenges to community-engaged measure development in psychological science.

摘要

在心理科学中得出有效结论的能力取决于严谨的测量工具开发。有心理障碍生活经历的人可以为测量工具开发过程做出宝贵贡献,但研究人员往往将他们排除在这个过程之外。当纳入有生活经历的人时,他们的贡献仅限于在过程早期提供咨询。本综述主张在整个测量工具开发过程中与有生活经历的人进行共同决策。我们概述了自我报告测量工具开发所涉及的阶段和步骤,强调了有生活经历的人在每个步骤中的关键贡献。接下来,以研究中社区参与的连续体为指导,我们回顾了心理科学文献中采用包括有心理障碍生活经历的人在内的社区参与式测量工具开发方法的研究。我们最后讨论了心理科学中社区参与式测量工具开发的机遇和挑战。

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