Suppr超能文献

让有心理障碍亲身经历的人参与进来:心理学领域社区参与式测量发展的当前研究与未来方向。

Engaging people with lived experience of psychological disorders: Current research and future directions for community-engaged measure development in psychological science.

作者信息

Boness Cassandra L, Hebden Hanna, Lardier David T, Spurgeon Liliana, Timmons Ashli, Simms Leonard J, Venner Kamilla L, Witkiewitz Katie

机构信息

University of New Mexico Center on Alcohol, Substance use, And Addictions.

University of New Mexico, Department of Psychology.

出版信息

Clin Psychol Sci. 2025 Jul;13(4):720-739. doi: 10.1177/21677026241304339. Epub 2025 Feb 5.

Abstract

The ability to make valid conclusions in psychological science rests upon rigorous measure development. People with lived experience of psychological disorders can make invaluable contributions to the measure development process, but they are often excluded from this process by researchers. When people with lived experience are included, their contributions are limited to consultation early in the process. This review advocates for shared decision-making with people with lived experience throughout the measure development process. We provide an overview of the phases and steps involved in the development of self-report measures, highlighting the critical contributions of people with lived experience at each step. Next, guided by the continuum of community engagement in research, we review studies from the psychological science literature that embrace community-engaged measure development approaches inclusive of people with lived experience of psychological disorders. We conclude with a discussion of opportunities and challenges to community-engaged measure development in psychological science.

摘要

在心理科学中得出有效结论的能力取决于严谨的测量工具开发。有心理障碍生活经历的人可以为测量工具开发过程做出宝贵贡献,但研究人员往往将他们排除在这个过程之外。当纳入有生活经历的人时,他们的贡献仅限于在过程早期提供咨询。本综述主张在整个测量工具开发过程中与有生活经历的人进行共同决策。我们概述了自我报告测量工具开发所涉及的阶段和步骤,强调了有生活经历的人在每个步骤中的关键贡献。接下来,以研究中社区参与的连续体为指导,我们回顾了心理科学文献中采用包括有心理障碍生活经历的人在内的社区参与式测量工具开发方法的研究。我们最后讨论了心理科学中社区参与式测量工具开发的机遇和挑战。

相似文献

4
Adapting Safety Plans for Autistic Adults with Involvement from the Autism Community.
Autism Adulthood. 2025 May 28;7(3):293-302. doi: 10.1089/aut.2023.0124. eCollection 2025 Jun.
6
"I Don't Understand Their Sense of Belonging": Exploring How Nonbinary Autistic Adults Experience Gender.
Autism Adulthood. 2024 Dec 2;6(4):462-473. doi: 10.1089/aut.2023.0071. eCollection 2024 Dec.
7
An Occupational Science Contribution to Camouflaging Scholarship: Centering Intersectional Experiences of Occupational Disruptions.
Autism Adulthood. 2025 May 28;7(3):238-248. doi: 10.1089/aut.2023.0070. eCollection 2025 Jun.
9
The Lived Experience of Autistic Adults in Employment: A Systematic Search and Synthesis.
Autism Adulthood. 2024 Dec 2;6(4):495-509. doi: 10.1089/aut.2022.0114. eCollection 2024 Dec.

本文引用的文献

1
Systematic review of patient contribution to the development of alcohol craving measurements.
Alcohol Clin Exp Res (Hoboken). 2024 Sep;48(9):1637-1656. doi: 10.1111/acer.15409. Epub 2024 Aug 1.
2
A systematic review of community-based participatory research studies involving individuals with mental illness.
Psychiatr Rehabil J. 2024 Mar;47(1):9-21. doi: 10.1037/prj0000536. Epub 2023 Nov 2.
4
"Knowing or not knowing": Living as harm reductionists in Twelve Step recovery.
J Subst Use Addict Treat. 2023 Feb;145:208954. doi: 10.1016/j.josat.2023.208954. Epub 2023 Jan 14.
5
The fundamental need for lived experience perspectives in developing and evaluating psychotherapies.
J Consult Clin Psychol. 2023 Mar;91(3):119-121. doi: 10.1037/ccp0000798. Epub 2023 Feb 16.
6
Qualitative insights in item development for a comprehensive and inclusive measure of recovery capital.
Addict Res Theory. 2022;30(6):403-413. doi: 10.1080/16066359.2022.2055002. Epub 2022 Mar 25.
8
Disease and decision.
J Subst Abuse Treat. 2022 Nov;142:108874. doi: 10.1016/j.jsat.2022.108874. Epub 2022 Sep 8.
10
The need for a measurement-based care professional practice guideline.
Psychotherapy (Chic). 2023 Mar;60(1):1-16. doi: 10.1037/pst0000439. Epub 2022 Jun 30.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验