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探索中国广东省小儿哮喘患者家庭照顾者对药学服务的认知与需求：一项横断面调查研究

Exploring the perception and needs of pharmaceutical care among family caregivers of pediatric asthma patients in Guangdong Province, China: a cross-sectional survey study.

作者信息

Lin Guohua, Chen Dehui, Hu Hao, Ung Carolina Oi Lam

机构信息

Institute of Chinese Medical Sciences, University of Macau, Taipa, Macao SAR, China.

Department of Pediatrics, The First Affiliated Hospital of Guangzhou Medical University, Guangzhou, China.

出版信息

BMC Prim Care. 2025 Aug 2;26(1):239. doi: 10.1186/s12875-025-02936-5.

DOI:10.1186/s12875-025-02936-5
PMID:40753389
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12318424/
Abstract

BACKGROUND

Asthma brings a huge burden to children and their families. The aim of this study is to investigate the level of understanding of asthma among family caregivers, the burden they facing in caring for children with asthma, and their needs of pharmaceutical care.

METHODS

A questionnaire informed by recent literature was distributed to family caregivers of children (< 18 years old) diagnosed with asthma from Guangdong Province, China. Multiple linear regression analysis was used to identify the factors associated with the caregivers' need of pharmaceutical care.

RESULTS

A total of 610 valid questionnaires were collected. Most of the participants were women (60.0%) or aged between 35 and 44 years (48.0%). Only 38.9% of participants believed that they had good asthma related knowledge. There were 59.2% of participants bearing high burden due to pediatric asthma, and 54.9% of the participants indicated great need for pharmaceutical intervention. The results of multiple linear regression showed that pharmaceutical care needs were significantly associated with their gender, age, duration of taking care of pediatric asthma patients, and overall burden (all p < 0.05).

CONCLUSIONS

Caregivers of pediatric asthma patients self-reported inadequate levels of asthma knowledge, high level of burden, and unmet needs for pharmaceutical care, all of which presented great opportunities for pharmacists to contribute to pediatric asthma management at the community level.

摘要

背景

哮喘给儿童及其家庭带来巨大负担。本研究旨在调查家庭照顾者对哮喘的了解程度、照顾哮喘儿童所面临的负担以及他们对药学服务的需求。

方法

向来自中国广东省的18岁以下哮喘患儿家庭照顾者发放一份基于近期文献编制的问卷。采用多元线性回归分析确定与照顾者药学服务需求相关的因素。

结果

共收集到610份有效问卷。大多数参与者为女性（60.0%）或年龄在35至44岁之间（48.0%）。只有38.9%的参与者认为自己具备良好的哮喘相关知识。59.2%的参与者因小儿哮喘承受着沉重负担，54.9%的参与者表示非常需要药学干预。多元线性回归结果显示，药学服务需求与他们的性别、年龄、照顾小儿哮喘患者的时长以及总体负担显著相关（均p<0.05）。

结论

小儿哮喘患者的照顾者自我报告哮喘知识水平不足、负担较重且药学服务需求未得到满足，所有这些都为药师在社区层面参与小儿哮喘管理提供了巨大机会。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b56/12318424/ab43d18dc12c/12875_2025_2936_Fig6_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b56/12318424/535375c61ae6/12875_2025_2936_Fig1_HTML.jpg
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https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b56/12318424/48adf79184ed/12875_2025_2936_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b56/12318424/b75ca0d7c1ed/12875_2025_2936_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b56/12318424/bfe5da052ff0/12875_2025_2936_Fig5_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b56/12318424/ab43d18dc12c/12875_2025_2936_Fig6_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b56/12318424/535375c61ae6/12875_2025_2936_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b56/12318424/efb89a21db42/12875_2025_2936_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b56/12318424/48adf79184ed/12875_2025_2936_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b56/12318424/b75ca0d7c1ed/12875_2025_2936_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b56/12318424/bfe5da052ff0/12875_2025_2936_Fig5_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2b56/12318424/ab43d18dc12c/12875_2025_2936_Fig6_HTML.jpg

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本文引用的文献

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Direct and indirect costs of paediatric asthma in the UK: a cost analysis.英国儿科哮喘的直接和间接成本：成本分析。
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Prediction of Asthma Exacerbations in Children.儿童哮喘急性发作的预测
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Medical resource utilization and the associated costs of asthma in China: a 1-year retrospective study.中国哮喘的医疗资源利用与相关费用：一项为期 1 年的回顾性研究。
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