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探索用于纤维肌痛非药物管理的移动应用程序中的关键组件:一项从患者和专业人员角度进行的定性研究。

Exploring the essential components in a mobile application for non-pharmacological management of fibromyalgia: a qualitative study from the perspective of patients and professionals.

作者信息

Arboleda-Trujillo María Adelaida, Pacichana-Quinayaz Sara Gabriela, Gafaro María Paz Grisales, Soto Katalina Espinosa, Hernández Orobio Olga Marina, Tovar-Sánchez María Ana

机构信息

Department of Psychiatry, Mental Health and Psychiatric Epidemiology, Universidad del Valle, Cali, Colombia.

Department of Physical Medicine and Rehabilitation, Research Group in Physical Medicine and Rehabilitation (GIRUV), Universidad del Valle, Cali, Colombia.

出版信息

Mhealth. 2025 Jul 14;11:26. doi: 10.21037/mhealth-24-56. eCollection 2025.

DOI:10.21037/mhealth-24-56
PMID:40755931
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12314691/
Abstract

BACKGROUND

Fibromyalgia is a syndrome characterized by widespread chronic pain, associated with fatigue, sleep disturbances, and cognitive impairment, among others. Effective management of fibromyalgia requires an integrated pharmacological and non-pharmacological approach that involves the patient in self-care. M-health devices are widely used as complementary resources for chronic pain management and patient empowerment. The objective of this study is to define the content of a mobile application, FibroApp, for the non-pharmacological management of fibromyalgia, based on the perspectives of patients and expert professionals.

METHODS

FibroApp was developed through a qualitative design, with the unit of analysis being meaningful discourse fragments from interviews with key informants (rheumatologists, physiatrists, physical and occupational therapists, psychiatrists, and patients diagnosed with fibromyalgia). Atlas.ti software was used for the analysis and triangulation of literature and qualitative findings.

RESULTS

The content of FibroApp, in consensus with the interviewees-both patients and experts-includes modules on physical activity or exercise, education, cognitive stimulation, reminders, and freely accessible supplementary material. The study highlighted the importance of social support, educational resources, and personalized exercise programs as essential components of the app.

CONCLUSIONS

The development of FibroApp underscores the potential of mHealth applications in enhancing the management of fibromyalgia by providing a multifaceted tool that addresses the physical, emotional, and educational needs of patients. The integration of social support, education, physical activity, and relaxation techniques within a mobile application offers a promising approach to improving the quality of life for individuals with fibromyalgia. Further research is needed to evaluate the app's effectiveness in larger, diverse populations.

摘要

背景

纤维肌痛是一种以广泛的慢性疼痛为特征的综合征,还伴有疲劳、睡眠障碍和认知障碍等。纤维肌痛的有效管理需要综合药物和非药物方法,让患者参与自我护理。移动健康设备被广泛用作慢性疼痛管理和患者赋权的辅助资源。本研究的目的是基于患者和专家专业人员的观点,确定一款用于纤维肌痛非药物管理的移动应用程序FibroApp的内容。

方法

FibroApp是通过定性设计开发的,分析单位是对关键信息提供者(风湿病学家、物理治疗师、职业治疗师、精神科医生以及被诊断患有纤维肌痛的患者)访谈中的有意义话语片段。Atlas.ti软件用于分析文献和定性研究结果并进行三角互证。

结果

FibroApp的内容经患者和专家受访者一致认可,包括身体活动或锻炼、教育、认知刺激、提醒以及可免费获取的补充材料等模块。该研究强调了社会支持、教育资源和个性化锻炼计划作为应用程序重要组成部分的重要性。

结论

FibroApp的开发凸显了移动健康应用程序在加强纤维肌痛管理方面的潜力,它提供了一个多方面的工具,可满足患者的身体、情感和教育需求。在移动应用程序中整合社会支持、教育、身体活动和放松技巧,为改善纤维肌痛患者的生活质量提供了一种有前景的方法。需要进一步研究以评估该应用程序在更大规模、多样化人群中的有效性。

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Effectiveness of eHealth therapeutic education interventions in the management of fibromyalgia: protocol for a systematic review and meta-analysis.电子健康治疗教育干预在纤维肌痛管理中的有效性:系统评价和荟萃分析的方案。
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