痴呆症照料者的喘息时间利用情况。

Respite time-use among dementia caregivers.

作者信息

Godfrey Donald A, Wong Bob, Thompson Amber D, Coleman Max E, Sparks Catharine, Utz Rebecca L

机构信息

College of Social and Behavioral Science, Psychology, University of Utah, Salt Lake City, UT, United States.

College of Nursing, University of Utah, Salt Lake City, UT, United States.

出版信息

Front Health Serv. 2025 Jul 28;5:1598518. doi: 10.3389/frhs.2025.1598518. eCollection 2025.

Abstract

UNLABELLED

Caregiving for family members with Alzheimer's disease and related dementias (ADRD) places significant burden on family members, leaving them at risk for a variety of mental and physical issues. While engaging in sufficient respite is generally considered an important resiliency factor for caregivers, recent research has demonstrated that caregivers are not satisfied with their respite and are not gaining much benefit during the limited respite time available to them.

OBJECTIVES

The current study examines whether goal-oriented respite planning, facilitated by a mobile intervention, can improve caregivers' subjective experience of their respite time-use.

METHOD

Caregivers (  85) used a mobile intervention to help them plan and evaluate their weekly respite time-use. Ecological Momentary assessments (weekly) monitored number of respite hours, respite goal achievement, and subjective assessment of their respite experience.

RESULTS

Respite goal achievement on a given week predicted improvements in participants' ratings of their respite time-use outcomes one week later. Specifically, one week after reporting improved respite goal achievement, caregivers' ratings on happiness with their respite activities, feeling that their respite made them a better caregiver, and feeling like they had enough respite all increased. These effects were independent of the number of respite hours they reported per week.

DISCUSSION

Engaging in weekly goal-setting and goal-review activities is associated with caregivers' subjective evaluation of their respite time-use. Interventions that help caregivers implement goal setting and achievement into their daily lives would likely benefit subjective evaluations and experiences with respite.

摘要

未标注

照顾患有阿尔茨海默病及相关痴呆症(ADRD)的家庭成员给家庭成员带来了巨大负担,使他们面临各种身心问题的风险。虽然通常认为获得足够的喘息机会是照顾者的一个重要恢复因素,但最近的研究表明,照顾者对他们的喘息机会不满意,并且在有限的喘息时间内没有获得太多益处。

目的

本研究探讨由移动干预促进的以目标为导向的喘息计划是否能改善照顾者对其喘息时间利用的主观体验。

方法

85名照顾者使用移动干预来帮助他们计划和评估每周的喘息时间利用情况。生态瞬时评估(每周一次)监测喘息小时数、喘息目标达成情况以及对他们喘息体验的主观评估。

结果

某一周的喘息目标达成情况预测了参与者一周后对其喘息时间利用结果评分的改善。具体而言,在报告喘息目标达成情况有所改善一周后,照顾者对其喘息活动的满意度、感觉喘息使他们成为更好的照顾者以及感觉自己有足够的喘息时间的评分均有所提高。这些影响与他们每周报告的喘息小时数无关。

讨论

参与每周的目标设定和目标回顾活动与照顾者对其喘息时间利用的主观评价相关。帮助照顾者将目标设定和实现融入日常生活的干预措施可能会有益于对喘息的主观评价和体验。

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