创新工具支持癌症患者的家庭护理人员：信息技术的作用。
Innovative Tools to Support Family Caregivers of Persons with Cancer: The Role of Information Technology.
机构信息
School of Nursing, University of Pennsylvania, Philadelphia, PA.
School of Medicine, University of Missouri, Columbia, MO.
出版信息
Semin Oncol Nurs. 2019 Aug;35(4):384-388. doi: 10.1016/j.soncn.2019.06.013. Epub 2019 Jun 19.
Abstract
OBJECTIVES
To describe the current evidence of studies examining the use of information technology for family caregivers of persons with cancer. We highlight emerging technologies and trends and discuss ethical and practical implications.
DATA SOURCES
Review scientific studies and systematic reviews of technology use to support caregivers of persons with cancer.
CONCLUSION
The evidence base is growing; however, more studies are needed to test the effectiveness of technology.
IMPLICATIONS FOR NURSING PRACTICE
Several tools have potential to provide support to family caregivers but the selection of such tools needs to address access, privacy, interoperability, and usability considerations.
摘要
目的
描述目前研究使用信息技术为癌症患者家属提供支持的证据。我们强调新兴技术和趋势，并讨论其伦理和实际影响。
资料来源
审查有关使用技术支持癌症患者家属的科学研究和系统评价。
结论
证据基础在不断发展，但仍需要更多研究来测试技术的有效性。
对护理实践的意义
有几种工具具有为家庭照顾者提供支持的潜力，但此类工具的选择需要考虑可及性、隐私、互操作性和可用性等因素。
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本文引用的文献
1
A Problem-Solving Intervention for Hospice Family Caregivers: A Randomized Clinical Trial.姑息治疗家庭照护者问题解决干预：一项随机临床试验。
J Am Geriatr Soc. 2019 Jul;67(7):1345-1352. doi: 10.1111/jgs.15894. Epub 2019 Apr 4.
2
Supporting Caregivers of Patients With Cancer: A Summary of Technology-Mediated Interventions and Future Directions.支持癌症患者的护理人员：技术介导干预措施及未来方向综述
Am Soc Clin Oncol Educ Book. 2018 May 23;38:838-849. doi: 10.1200/EDBK_201397.
3
Delivering problem-solving therapy to family caregivers of people with cancer: A feasibility study in outpatient palliative care.为癌症患者的家庭照顾者提供解决问题的疗法：在姑息治疗门诊中的可行性研究。
Psychooncology. 2018 Oct;27(10):2494-2499. doi: 10.1002/pon.4859. Epub 2018 Aug 31.
4
Annual Report to the Nation on the Status of Cancer, part I: National cancer statistics.《国家癌症报告：第一部分：全国癌症统计数据》
Cancer. 2018 Jul 1;124(13):2785-2800. doi: 10.1002/cncr.31551. Epub 2018 May 22.
5
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6
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8
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10
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