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J Am Med Inform Assoc. 2020 Dec 9;27(12):1987-1998. doi: 10.1093/jamia/ocaa235.
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"Nothing About Us, without Us." How Community-Based Participatory Research Methods Were Adapted in an Indigenous End-of-Life Study Using Previously Collected Data.“没有我们的参与,就没有关于我们的事。” 基于社区的参与性研究方法如何在一项使用先前收集数据的原住民临终研究中得到应用。
Can J Aging. 2020 Jun;39(2):145-155. doi: 10.1017/S0714980819000291.
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What Contributions, if Any, Can Non-Indigenous Researchers Offer Toward Decolonizing Health Research?非原住民研究人员可以为健康研究的去殖民化做出哪些贡献(如果有的话)?
Qual Health Res. 2020 Jan;30(2):205-216. doi: 10.1177/1049732319861932. Epub 2019 Jul 17.
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Decades of Doing: Indigenous Women Academics Reflect on the Practices of Community-Based Health Research.数十年的实践:原住民女性学者对基于社区的健康研究实践的反思
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规划你在与原住民社区开展的社区参与研究中的“独木舟”之旅(结果与期望的审慎认知与导航)。

Planning for your CANOE (Circumspect Awareness and Navigation of Outcomes and Expectations) journey in community-engaged research with Indigenous communities.

作者信息

Collins Katherine A, Huyser Kimberly R, Johnson-Jennings Michelle

机构信息

Department of Psychology and Health Studies, University of Saskatchewan, Saskatoon, SK, Canada.

Department of Sociology, University of British Columbia, Vancouver, BC, Canada.

出版信息

Lancet Glob Health. 2025 Sep;13(9):e1642-e1647. doi: 10.1016/S2214-109X(25)00262-1.

DOI:10.1016/S2214-109X(25)00262-1
PMID:40845889
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12393168/
Abstract

Community engagement has long been recognised as necessary for working with Indigenous communities. Although many researchers are excited to engage with communities and many articles describe the process of community engagement in research, almost none have addressed the foundational question of whether researchers should engage with Indigenous communities for research. In this Viewpoint, we will discuss the Circumspect Awareness and Navigation of Outcomes and Expectations (CANOE) approach, which describes what should be considered before embarking on a community-engaged research journey with Indigenous communities. We build on existing literature regarding understanding the need to recognise positionality, practise reflexivity, assess personal strengths and weaknesses, and consider abilities and skills that can be offered or promised to Indigenous partners. Our goal is to provide principles of being reflexive, intentional, and careful before launching into research with Indigenous communities. Drawing from our combined decades of experience as Indigenous, community-engaged scientists leading national and international community projects, we draw from the extant literature and lessons learned in the field to provide a guiding CANOE approach for community-engaged research. This Viewpoint provides researchers interested in community-engaged projects with the information they need to consider before embarking on their research journey. We provide a set of CANOE self-assessment questions designed to evaluate a researcher's preparedness, suitability to invest in a research partnership, and adaptability to navigate a research journey with Indigenous communities. Not only should relationships be properly developed and nurtured, but researchers need to fundamentally understand their ability to develop research partnerships that prioritise Indigenous cultural worldviews and protocols in research design, development, testing, and implementation.

摘要

长期以来,社区参与一直被认为是与原住民社区合作所必需的。尽管许多研究人员热衷于与社区合作,许多文章也描述了研究中的社区参与过程,但几乎没有人探讨过研究人员是否应该为了研究而与原住民社区合作这一基本问题。在这篇观点文章中,我们将讨论“结果与期望的审慎认知与导航”(CANOE)方法,该方法描述了在与原住民社区开启社区参与式研究之旅之前应考虑的因素。我们基于现有文献,这些文献涉及理解认识自身立场的必要性、进行反思、评估个人优缺点以及考虑可以向原住民伙伴提供或承诺的能力和技能。我们的目标是在与原住民社区开展研究之前,提供反思性、自觉性和谨慎性的原则。凭借我们作为原住民、参与社区的科学家在领导国家和国际社区项目方面数十年的综合经验,我们借鉴该领域的现有文献和经验教训,为社区参与式研究提供一种指导性的CANOE方法。这篇观点文章为对社区参与项目感兴趣的研究人员提供了他们在开启研究之旅前需要考虑的信息。我们提供了一组CANOE自我评估问题,旨在评估研究人员的准备情况、投资研究伙伴关系的适宜性以及与原住民社区开展研究之旅的适应能力。不仅要妥善建立和培养关系,研究人员还需要从根本上了解自己建立研究伙伴关系的能力,这种伙伴关系应在研究设计、开发、测试和实施中优先考虑原住民的文化世界观和规范。