Jain Pankaj, Jain Bhav, Doshi Rushabh, Jain Urvish, Claypool Henry, Aboulafia Ariana, Swenor Bonnielin K
Indiana University of Pennsylvania.
ZS Associates.
Milbank Q. 2025 Aug 28. doi: 10.1111/1468-0009.70049.
Policy Points Universal Design and Inclusion: Mandate all digital health platforms, devices, and services be built on universal design principles and codeveloped with people with disabilities, ensuring compatibility with assistive technology and emergency response features. Standardized Disability Data Collection: Implement mandatory, standardized disability data collection in electronic health records with robust privacy protections, addressing the Patient Protection and Affordable Care Act Section 4302 gaps while enabling personalized care and research. Accessibility as Civil Rights: Treat accessibility as a civil rights issue with strict enforcement of Section 508, Americans With Disabilities Act, and Section 1557, including the patient interoperability mandate, penalties for noncompliance, and legal recourse for patients. Funding and Incentives: Establish funding incentives prioritizing disability equity, digital literacy programs, value-based payment models, and workforce training for healthcare professionals using disability-inclusive digital health tools.
政策要点
要求所有数字健康平台、设备和服务均基于通用设计原则构建，并与残疾人共同开发，确保与辅助技术和应急响应功能兼容。
在电子健康记录中实施强制性、标准化的残疾数据收集，并具备强大的隐私保护措施，弥补《患者保护与平价医疗法案》第4302条的漏洞，同时实现个性化医疗和研究。
将无障碍视为民权问题，严格执行第508条、《美国残疾人法案》和第1557条，包括患者互操作性要求、违规处罚以及患者的法律追索权。
设立资金激励机制，优先考虑残疾公平、数字素养计划、基于价值的支付模式以及针对使用包含残疾人群体的数字健康工具的医疗保健专业人员的劳动力培训。
