Hopstaken Jana S, Koeneman Mats, Hooijer Robin, van Rijssel Concha C, van Voorthuizen Theo, Oort Frank A, Blanken Charlotte F J M, de Groot Martijn, van Laarhoven Cees J H M, Stommel Martijn W J
Department of Surgery, Radboudumc, Geert Grooteplein 10 (route 618), Nijmegen, 6525 GA, The Netherlands, 31 0243668086.
Health Innovation Labs, Radboudumc, Nijmegen, The Netherlands.
J Med Internet Res. 2025 Sep 5;27:e55598. doi: 10.2196/55598.
Pancreatic cancer is considered a complex cancer requiring specific expertise in diagnostic workup and multimodality treatment. Often, multiple health care providers in different hospitals are involved during patient care. This fragmentation of care challenges health care providers in the network to deliver efficient, coherent, and continuous network care. We performed a human-centered design (HCD) sprint in order to find means to improve network care for patients diagnosed with pancreatic cancer. The sprint comprised 5 days with different goals: empathize, define, ideate, prototype, and test. Experts and stakeholders were approached from the pancreatic cancer network to contribute. By using HCD, a goal was defined, various prototypes were explored, and one prototype was tested. The HCD Sprint led to a shared goal, which was to deliver pancreatic cancer network care in a (virtual) hospital in which there is "one narrative." This means that the patient's context and preferences are always clear and taken into account, care is characterized by a short time to diagnosis and treatment, and patient data are easily available for patients and involved clinicians. The accompanying prototypes were (1) network agreements, (2) patient itinerary, (3) transmural trajectory guidance, and (4) data sharing. For the latter, we developed and pilot-tested a real-time data sharing dashboard called CONNECT. The first pilot-test was promising and provided feedback for further development. In this viewpoint paper, we show that a HCD sprint is able to find possible means to improve pancreatic network care in a short time span. A real-time data sharing dashboard (CONNECT) was developed and pilot tested. The next steps include further development of the dashboard, implementation in our network, and long-term evaluation studies.
胰腺癌被认为是一种复杂的癌症，在诊断检查和多模式治疗方面需要特定的专业知识。通常，在患者护理过程中会涉及不同医院的多个医疗服务提供者。这种护理的碎片化给网络中的医疗服务提供者带来了挑战，要求他们提供高效、连贯和持续的网络护理。我们进行了一次以用户为中心的设计（HCD）冲刺，以寻找改善胰腺癌患者网络护理的方法。这次冲刺为期5天，有不同的目标：共情、定义、构思、原型制作和测试。我们邀请了胰腺癌网络中的专家和利益相关者参与其中。通过使用HCD，我们确定了一个目标，探索了各种原型，并对其中一个原型进行了测试。HCD冲刺促成了一个共同目标，即在一家（虚拟）医院中提供胰腺癌网络护理，实现“一个故事线”。这意味着患者的背景和偏好始终清晰且被考虑在内，护理的特点是诊断和治疗时间短，患者和相关临床医生能够轻松获取患者数据。随之而来的原型包括：（1）网络协议，（2）患者行程安排，（3）跨学科轨迹指导，以及（4）数据共享。对于后者，我们开发并进行了试点测试一个名为CONNECT的实时数据共享仪表板。首次试点测试很有前景，并为进一步开发提供了反馈。在这篇观点论文中，我们表明HCD冲刺能够在短时间内找到改善胰腺网络护理的可能方法。我们开发并试点测试了一个实时数据共享仪表板（CONNECT）。接下来的步骤包括仪表板的进一步开发、在我们的网络中实施以及长期评估研究。
