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澳大利亚某地区医疗服务机构中患者及医疗专业人员对急性夏科特神经关节病评估、诊断和管理的看法。

Patient and Health Professional Perceptions of the Assessment, Diagnosis and Management of Acute Charcot Neuro-Osteoarthropathy at a Regional Australian Health Service.

作者信息

Diacogiorgis Dimitri, Perrin Byron M, MacDonald Emma, Kingsley Michael I C

机构信息

Department of Allied Health Assistants, Grampians Health, Ballarat, Australia.

La Trobe Rural Health School, La Trobe University, Bendigo, Australia.

出版信息

J Foot Ankle Res. 2025 Sep;18(3):e70079. doi: 10.1002/jfa2.70079.

Abstract

BACKGROUND

Acute Charcot neuroarthropathy (CN) is a rare but serious complication of diabetes that requires timely diagnosis and evidence-based management to prevent long-term disability. In regional or rural settings, delivering evidence-based care is particularly challenging due to systemic and contextual barriers.

OBJECTIVE

To explore the perceptions of patients and health professionals about assessment, diagnosis and management of acute CN in a regional Victorian health service.

METHOD

This study used a qualitative research design, utilising thematic analysis of semi-structured interviews with patients with previous acute CN and focus groups with health professionals (orthopaedic surgeons, podiatrists and prosthetists and orthotists) involved in the assessment and management of patients with acute CN. Two assessors used inductive thematic analysis to identify key themes related to acute CN care delivery.

RESULTS

Four overarching themes were identified: (1) barriers to evidence-based care, including delayed diagnosis, limited access to skilled clinicians and diagnostic tools and the burden of treatment; (2) enablers, such as timely access to knowledgeable clinicians and resources; (3) mitigating factors, including patient engagement, empathetic communication and multidisciplinary support and (4) strategies for improvement, such as public and professional education, upskilling of health professionals and integration of psychological and person-centred support.

CONCLUSION

Improving outcomes for people with acute CN in regional or rural settings requires a multifaceted approach. Enhancing awareness, building workforce capacity and embedding patient-centred care practices are essential to ensure timely diagnosis, equitable access to treatment and improved quality of life.

摘要

背景

急性夏科氏神经关节病(CN)是糖尿病一种罕见但严重的并发症,需要及时诊断并采取循证管理措施以防止长期残疾。在地区或农村地区,由于系统性和环境障碍,提供循证护理尤其具有挑战性。

目的

探讨患者和卫生专业人员对维多利亚州一个地区卫生服务机构中急性CN评估、诊断和管理的看法。

方法

本研究采用定性研究设计,对既往患有急性CN的患者进行半结构化访谈,并对参与急性CN患者评估和管理的卫生专业人员(骨科医生、足病医生、假肢矫形师)进行焦点小组访谈,运用主题分析法。两名评估人员采用归纳主题分析法确定与急性CN护理提供相关的关键主题。

结果

确定了四个总体主题:(1)循证护理的障碍,包括诊断延迟、获得熟练临床医生和诊断工具的机会有限以及治疗负担;(2)促进因素,如及时获得知识渊博的临床医生和资源;(3)缓解因素,包括患者参与、共情沟通和多学科支持;(4)改进策略,如公众和专业教育、卫生专业人员技能提升以及整合心理和以患者为中心的支持。

结论

改善地区或农村地区急性CN患者的治疗效果需要采取多方面的方法。提高认识、建设劳动力能力和融入以患者为中心的护理实践对于确保及时诊断、公平获得治疗和改善生活质量至关重要。

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