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本文引用的文献

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Exploring the lived experiences of individuals living with Charcot neuro-osteoarthropathy in Australia: A qualitative research study.探索澳大利亚夏科特神经骨关节病患者的生活经历:一项定性研究。
J Foot Ankle Res. 2025 Jun;18(2):e70037. doi: 10.1002/jfa2.70037.
2
Assessment, diagnosis and management characteristics of people with acute Charcot neuro-osteoarthropathy in a regional Australian health service: A 3-year retrospective audit.评估、诊断和管理澳大利亚某地区卫生服务机构中急性夏科氏神经骨关节病患者的特点:一项为期 3 年的回顾性审计。
Aust J Rural Health. 2024 Oct;32(5):987-995. doi: 10.1111/ajr.13168. Epub 2024 Jul 23.
3
Experiences and impact of a rural Australian high-risk foot service: A multiple-methods study.澳大利亚农村高危足部服务的经验和影响:一项多方法研究。
Aust J Rural Health. 2024 Apr;32(2):286-298. doi: 10.1111/ajr.13087. Epub 2024 Feb 9.
4
Practical guidelines on the prevention and management of diabetes-related foot disease (IWGDF 2023 update).《糖尿病相关足部疾病预防与管理实用指南(IWGDF 2023 更新版)》。
Diabetes Metab Res Rev. 2024 Mar;40(3):e3657. doi: 10.1002/dmrr.3657. Epub 2023 May 27.
5
Guidelines on the diagnosis and treatment of active Charcot neuro-osteoarthropathy in persons with diabetes mellitus (IWGDF 2023).《糖尿病相关活跃性夏科氏骨-神经病的诊断和治疗指南(IWGDF 2023)》。
Diabetes Metab Res Rev. 2024 Mar;40(3):e3646. doi: 10.1002/dmrr.3646. Epub 2023 May 23.
6
Factors impacting the evidence-based assessment, diagnosis and management of Acute Charcot Neuroarthropathy: a systematic review.影响急性夏科氏神经骨关节病循证评估、诊断和管理的因素:系统评价。
J Foot Ankle Res. 2021 Apr 7;14(1):26. doi: 10.1186/s13047-021-00469-5.
7
PodCast: A rural and regional service model for podiatrist-led total contact casting.播客:足病医生主导的全接触石膏固定的农村和地区服务模式。
Aust J Rural Health. 2019 Oct;27(5):433-437. doi: 10.1111/ajr.12548. Epub 2019 Sep 11.
8
Influence of Patient Setting and Dedicated Limb Salvage Efforts on Outcomes in Charcot-Related Foot Ulcer.患者环境及肢体挽救专项措施对夏科氏足溃疡治疗结果的影响
Int J Low Extrem Wounds. 2019 Dec;18(4):362-366. doi: 10.1177/1534734619861571. Epub 2019 Jul 15.
9
Diabetic osteoarthropathy care in Sweden - Need for improvement: A national inventory.瑞典的糖尿病性骨关节炎护理——改进需求:一项全国性调查
J Clin Transl Endocrinol. 2017 Jun 29;9:32-37. doi: 10.1016/j.jcte.2017.06.001. eCollection 2017 Sep.
10
Physician knowledge of a rare foot condition - influence of diabetic patient population on self-described knowledge and treatment.医生对一种罕见足部疾病的了解——糖尿病患者群体对自我描述的知识和治疗的影响。
Clin Diabetes Endocrinol. 2017 Feb 8;3:2. doi: 10.1186/s40842-017-0041-4. eCollection 2017.

澳大利亚某地区医疗服务机构中患者及医疗专业人员对急性夏科特神经关节病评估、诊断和管理的看法。

Patient and Health Professional Perceptions of the Assessment, Diagnosis and Management of Acute Charcot Neuro-Osteoarthropathy at a Regional Australian Health Service.

作者信息

Diacogiorgis Dimitri, Perrin Byron M, MacDonald Emma, Kingsley Michael I C

机构信息

Department of Allied Health Assistants, Grampians Health, Ballarat, Australia.

La Trobe Rural Health School, La Trobe University, Bendigo, Australia.

出版信息

J Foot Ankle Res. 2025 Sep;18(3):e70079. doi: 10.1002/jfa2.70079.

DOI:10.1002/jfa2.70079
PMID:40913780
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12413842/
Abstract

BACKGROUND

Acute Charcot neuroarthropathy (CN) is a rare but serious complication of diabetes that requires timely diagnosis and evidence-based management to prevent long-term disability. In regional or rural settings, delivering evidence-based care is particularly challenging due to systemic and contextual barriers.

OBJECTIVE

To explore the perceptions of patients and health professionals about assessment, diagnosis and management of acute CN in a regional Victorian health service.

METHOD

This study used a qualitative research design, utilising thematic analysis of semi-structured interviews with patients with previous acute CN and focus groups with health professionals (orthopaedic surgeons, podiatrists and prosthetists and orthotists) involved in the assessment and management of patients with acute CN. Two assessors used inductive thematic analysis to identify key themes related to acute CN care delivery.

RESULTS

Four overarching themes were identified: (1) barriers to evidence-based care, including delayed diagnosis, limited access to skilled clinicians and diagnostic tools and the burden of treatment; (2) enablers, such as timely access to knowledgeable clinicians and resources; (3) mitigating factors, including patient engagement, empathetic communication and multidisciplinary support and (4) strategies for improvement, such as public and professional education, upskilling of health professionals and integration of psychological and person-centred support.

CONCLUSION

Improving outcomes for people with acute CN in regional or rural settings requires a multifaceted approach. Enhancing awareness, building workforce capacity and embedding patient-centred care practices are essential to ensure timely diagnosis, equitable access to treatment and improved quality of life.

摘要

背景

急性夏科氏神经关节病(CN)是糖尿病一种罕见但严重的并发症,需要及时诊断并采取循证管理措施以防止长期残疾。在地区或农村地区,由于系统性和环境障碍,提供循证护理尤其具有挑战性。

目的

探讨患者和卫生专业人员对维多利亚州一个地区卫生服务机构中急性CN评估、诊断和管理的看法。

方法

本研究采用定性研究设计,对既往患有急性CN的患者进行半结构化访谈,并对参与急性CN患者评估和管理的卫生专业人员(骨科医生、足病医生、假肢矫形师)进行焦点小组访谈,运用主题分析法。两名评估人员采用归纳主题分析法确定与急性CN护理提供相关的关键主题。

结果

确定了四个总体主题:(1)循证护理的障碍,包括诊断延迟、获得熟练临床医生和诊断工具的机会有限以及治疗负担;(2)促进因素,如及时获得知识渊博的临床医生和资源;(3)缓解因素,包括患者参与、共情沟通和多学科支持;(4)改进策略,如公众和专业教育、卫生专业人员技能提升以及整合心理和以患者为中心的支持。

结论

改善地区或农村地区急性CN患者的治疗效果需要采取多方面的方法。提高认识、建设劳动力能力和融入以患者为中心的护理实践对于确保及时诊断、公平获得治疗和改善生活质量至关重要。