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艾滋病患者关于该疾病的心理社会经历与应对:一项系统综述与定性元综合分析

Psychosocial Experience and Coping of AIDS Patients About the Disease: A Systematic Review and Qualitative Meta-Synthesis.

作者信息

Tang Yuanyuan, Liu Qiqi, Cheng Wenlin, Liu Shaonan, Yi Lan, Li Rui

机构信息

Wuxi Medical College, The Jiangnan University, Wuxi, Jiangsu Province, 214122, People's Republic of China.

Nursing College, The Beihua University, Jilin, Jilin Province, 132000, People's Republic of China.

出版信息

Psychol Res Behav Manag. 2025 Sep 8;18:1903-1914. doi: 10.2147/PRBM.S539554. eCollection 2025.

Abstract

AIM

To systematically integrate the psychosocial experiences and coping mechanisms of AIDS patients after the disease, and to understand their true feelings, in order to provide a basis for better implementation of psychological interventions for AIDS patients.

METHODS

An automated search of the Cochrane Library, PubMed, JBI, CINAHL, Web of Science, EBSCO, Embase database, CNKI, Wanfang Database, Wipro Database, and SinoMed from the database's creation until March 2025 turned up all the literature on the psychosocial experience of AIDS patients and response strategies. The quality of the gathered literature was assessed using the JBI Center for Evidence-Based Health Care's 2016 Qualitative Research Evaluation Tool, and the results were compiled and interpreted using the pooled synthesis approach.

RESULTS

A total of 15 papers were included, and 36 themes were distilled and grouped into 11 new categories, which were brought together into 3 integrative results: complex psychological responses: identity ruptures and struggles, reconstructing psychological adaptations: and from collapse to reconstruction, adapting coping strategies: from passive acceptance to active resistance.

CONCLUSION

The psychosocial experience of AIDS patients is multidimensional and dynamic, and clinical staff should pay attention to the psychosocial problems of patients. In the future, through policy optimization, individual empowerment and social support, personalized psychological intervention and effective health education will be provided to build a more inclusive AIDS care ecosystem.

PATIENT OR PUBLIC CONTRIBUTION

This systematic review did not directly involve people living with HIV to design or conduct the review. However, this finding will inform a qualitative study designed to explore the psychosocial feelings and illness coping experiences of people living with AIDS.

摘要

目的

系统整合艾滋病患者患病后的心理社会经历及应对机制,了解其真实感受,为更好地对艾滋病患者实施心理干预提供依据。

方法

通过自动化检索Cochrane图书馆、PubMed、JBI、CINAHL、Web of Science、EBSCO、Embase数据库、中国知网、万方数据库、维普数据库和中国生物医学文献数据库,检索自建库至2025年3月期间所有关于艾滋病患者心理社会经历及应对策略的文献。采用JBI循证卫生保健中心2016年定性研究评价工具对纳入文献的质量进行评价,并采用汇总综合法对结果进行汇总和解读。

结果

共纳入15篇文献,提炼出36个主题并归纳为11个新类别,归为3个综合结果:复杂的心理反应:身份认同的破裂与挣扎、重建心理适应:从崩溃到重建、适应性应对策略:从被动接受转为积极抗争。

结论

艾滋病患者的心理社会经历具有多维度和动态性,临床工作人员应关注患者的心理社会问题。未来,通过政策优化、个人赋权和社会支持,为患者提供个性化心理干预和有效的健康教育,构建更具包容性的艾滋病照护生态系统。

患者或公众贡献

本系统评价未直接纳入艾滋病病毒感染者参与设计或实施评价。然而,本研究结果将为一项旨在探索艾滋病患者心理社会感受和疾病应对经历的定性研究提供参考。

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PLoS One. 2024 Oct 23;19(10):e0309231. doi: 10.1371/journal.pone.0309231. eCollection 2024.
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Psychol Res Behav Manag. 2024 Apr 6;17:1487-1498. doi: 10.2147/PRBM.S456850. eCollection 2024.
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