Jansen Sammie N G, Mulder Bob C, Boekhold Alexandra E
Department of Social Sciences, Chair Group Philosophy, Wageningen University & Research, Hollandseweg 1, Wageningen, 6706, KN, The Netherlands.
Centre for Sustainability, Environment and Health, National Institute for Public Health and the Environment, RIVM, P.O. Box 1, Bilthoven, 3720 BA, The Netherlands.
J Bioeth Inq. 2025 Sep 15. doi: 10.1007/s11673-025-10473-0.
The development of presymptomatic screening for risks to children's mental health holds the promise to prevent or reduce the burden of mental disorders by enabling timely preventive actions. However, such screening programmes also raise ethical concerns related to false positive results, increased anxiety, harmful effects on a child's sense of self, and stigmatization. Stakeholders can provide valuable insights into these ethical concerns from their engagement with practice. Therefore, in this study we conducted six focus group discussions with professionals in the child mental health domain (in clinical, educational, or policy settings) to investigate their views on presymptomatic screening and identify ethical considerations. The discussions took place in six European countries. Three main themes were identified: 1) Promises and concerns about screening for risks to children's mental health, 2) Additional considerations about biomarker screening, and 3) Implications for healthcare systems and society. Ethical considerations included the benefits of screening outweighing the harms, informed and autonomous decision-making, the actionability of screening outcomes, stigmatization, and medicalization. Our findings underscore the importance of exercising caution in the development and implementation of presymptomatic screening for risks to children's mental health. Implications for practice and future research are discussed.
对儿童心理健康风险进行症状前筛查的发展有望通过采取及时的预防措施来预防或减轻精神障碍的负担。然而,此类筛查项目也引发了一些伦理问题,涉及假阳性结果、焦虑增加、对儿童自我认知的有害影响以及污名化。利益相关者通过参与实践可以为这些伦理问题提供有价值的见解。因此,在本研究中,我们与儿童心理健康领域(临床、教育或政策环境)的专业人员进行了六次焦点小组讨论,以调查他们对症状前筛查的看法并确定伦理考量因素。讨论在六个欧洲国家进行。确定了三个主要主题:1)对儿童心理健康风险筛查的前景与担忧,2)关于生物标志物筛查的其他考量,3)对医疗系统和社会的影响。伦理考量因素包括筛查的益处大于危害、知情和自主决策、筛查结果的可操作性、污名化以及医学化。我们的研究结果强调了在开展和实施儿童心理健康风险症状前筛查时谨慎行事的重要性。讨论了对实践和未来研究的启示。