Wishart M C, Bidder R T, Gray O P
Child Care Health Dev. 1980 Nov-Dec;6(6):361-76. doi: 10.1111/j.1365-2214.1980.tb00814.x.
This study was undertaken to investigate how parents who have a child with some degree of handicap describe their child's behaviour and their own feelings and adjustment to having such a child. Their response was compared with that of parents of age-matched children without any known development difficulties. The parents and children were grouped according to the manifested handicap of the child (Down's syndrome, developmental quotient (DQ) greater than 65, DQ less tha 65 with/without limb dysfunction and normal controls). The children's ages ranged from 4 to 126 months and they all had received the South Glamorgan Home Advisory Service (HAS) at some time. Sixty-one families completed attitude and behaviour rating scales and parents were asked to express their preferences for prescribed services. The attitude and rating scales were also completed by twenty-five control families with normal children. A consistent trend was revealed towards increasingly favourable attitudes and feelings from past to future, and the DQ less than 65, with/without limb dysfunction, group was found to require further investigation in terms of provision of appropriate services. A distinct preference was shown for the South Glamorgan Home Advisory Service.
本研究旨在调查有一定程度残疾孩子的家长如何描述孩子的行为、他们自己的感受以及对拥有这样一个孩子的适应情况。将他们的回答与年龄匹配的无任何已知发育困难孩子的家长的回答进行比较。根据孩子表现出的残疾情况(唐氏综合征、发育商(DQ)大于65、DQ小于65且有/无肢体功能障碍以及正常对照组)对家长和孩子进行分组。孩子们的年龄在4至126个月之间,他们都曾在某个时候接受过南格拉摩根家庭咨询服务(HAS)。61个家庭完成了态度和行为评定量表,并要求家长表达他们对规定服务的偏好。25个有正常孩子的对照家庭也完成了态度和评定量表。从过去到未来,呈现出一种态度和感受越来越积极的一致趋势,并且发现DQ小于65且有/无肢体功能障碍的组在提供适当服务方面需要进一步调查。对南格拉摩根家庭咨询服务表现出明显的偏好。