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亨廷顿舞蹈症的社会视角

Social perspectives in Huntington's chorea.

作者信息

Hayden M R, Ehrlich R, Parker H, Ferera S J

出版信息

S Afr Med J. 1980 Aug 2;58(5):201-3.

PMID:6447366
Abstract

The social implications of Huntington's chorea are serious and far-reaching, affecting all members of the family and the community as a whole. The relativly common occurrence of suicide and of major and minor crimes are cause for concern. The disease imposes a significant economic burden on both the family and society. The minimum direct cost to the state of a single affected prson with Huntington's chorea in South Africa is estimated at R23 000.

摘要

亨廷顿舞蹈症的社会影响严重且深远,影响着整个家庭和社区的所有成员。自杀以及轻重罪案相对频繁的发生令人担忧。这种疾病给家庭和社会都带来了巨大的经济负担。在南非,一名亨廷顿舞蹈症患者给国家造成的最低直接成本估计为23000兰特。

相似文献

1
Social perspectives in Huntington's chorea.亨廷顿舞蹈症的社会视角
S Afr Med J. 1980 Aug 2;58(5):201-3.
2
Huntington's chorea. Its impact on the spouse.亨廷顿舞蹈症。其对配偶的影响。
J Nerv Ment Dis. 1980 Apr;168(4):209-14.
3
Huntington's chorea in the Cape coloured community of South Africa.南非开普有色人种社区的亨廷顿舞蹈症
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Partners of Huntington patients: implications of the disease and opinions about predictive testing and prenatal diagnosis.
Genet Couns. 1990;1(2):151-9.
5
["Self-help potential of the family" can overtax the abilities of the marital partner. Report on a family group of Huntington chorea patients].
Psychiatr Prax. 1987 May;14(3):78-83.
6
The origin of Huntington's chorea in the Afrikaner population of South Africa.南非阿非利卡人群中亨廷顿舞蹈症的起源。
S Afr Med J. 1980 Aug 2;58(5):197-200.
7
Attitudes toward marriage and childbearing of individuals at risk for Huntington's disease.
Soc Work Health Care. 1984 Summer;9(4):73-81. doi: 10.1300/J010v09n04_07.
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[Huntington's chorea from the viewpoint of forensic psychiatry].[从法医精神病学角度看亨廷顿舞蹈症]
Cesk Psychiatr. 1992 Aug;88(3-4):187-92.
9
[Suicide in Huntington's disease: a review].[亨廷顿舞蹈症中的自杀:综述]
Rev Med Suisse. 2009 Mar 18;5(195):646-8.
10
Huntington's chorea on the island of Mauritius.毛里求斯岛上的亨廷顿舞蹈症。
S Afr Med J. 1981 Dec 26;60(26):1001-2.

引用本文的文献

1
Social cognition and quality of life in Huntington's disease.亨廷顿舞蹈症中的社会认知与生活质量
Front Psychiatry. 2022 Aug 24;13:963457. doi: 10.3389/fpsyt.2022.963457. eCollection 2022.
2
Exploring the Reliability and Validity of the Huntington's Disease Quality of Life Battery for Carers (HDQoL-C) within A Polish Population.探讨亨廷顿病护理者生活质量量表(HDQoL-C)在波兰人群中的信度和效度。
Int J Environ Res Public Health. 2019 Jun 30;16(13):2323. doi: 10.3390/ijerph16132323.
3
"This could be me": exploring the impact of genetic risk for Huntington's disease young caregivers.
“这可能发生在我身上”:探究亨廷顿舞蹈症遗传风险对年轻照料者的影响
J Community Genet. 2019 Apr;10(2):291-302. doi: 10.1007/s12687-018-0395-z. Epub 2018 Nov 14.
4
Further evidence of reliability and validity of the Huntington's disease quality of life battery for carers: Italian and French translations.进一步证明亨廷顿病护理者生活质量量表的可靠性和有效性:意大利语和法语翻译。
Qual Life Res. 2013 Jun;22(5):1093-8. doi: 10.1007/s11136-012-0227-2. Epub 2012 Jul 21.
5
Huntington's disease from the patient, caregiver and physician's perspectives: three sides of the same coin?从患者、护理人员和医生的角度看亨廷顿病:同一枚硬币的三个面?
J Neural Transm (Vienna). 2012 Nov;119(11):1361-5. doi: 10.1007/s00702-012-0787-x. Epub 2012 Mar 8.
6
'All the burden on all the carers': exploring quality of life with family caregivers of Huntington's disease patients.“所有的负担都落在所有照顾者身上”:探索亨廷顿病患者家庭照顾者的生活质量。
Qual Life Res. 2012 Oct;21(8):1425-35. doi: 10.1007/s11136-011-0062-x. Epub 2011 Nov 13.
7
Suicidal behavior in prodromal Huntington disease.前驱期亨廷顿病中的自杀行为。
Neurodegener Dis. 2011;8(6):483-90. doi: 10.1159/000327754. Epub 2011 Jun 9.
8
A worldwide assessment of the frequency of suicide, suicide attempts, or psychiatric hospitalization after predictive testing for Huntington disease.对亨廷顿病预测性检测后自杀、自杀未遂或精神科住院频率的全球评估。
Am J Hum Genet. 1999 May;64(5):1293-304. doi: 10.1086/302374.
9
Crime in Huntington's disease: a study of registered offences among patients, relatives, and controls.亨廷顿舞蹈症中的犯罪行为:一项针对患者、亲属及对照人群中登记在案犯罪行为的研究
J Neurol Neurosurg Psychiatry. 1998 Oct;65(4):467-71. doi: 10.1136/jnnp.65.4.467.
10
Spin label electron paramagnetic resonance (EPR) studies of Huntington disease erythrocyte membranes.亨廷顿病红细胞膜的自旋标记电子顺磁共振(EPR)研究
Am J Hum Genet. 1982 May;34(3):469-80.