Bodkin C M, Pigott T J, Mann J R
Br Med J (Clin Res Ed). 1982 May 22;284(6328):1542-4. doi: 10.1136/bmj.284.6328.1542.
Fifty-nine of 73 families of children referred for treatment of cancer during 1980 co-operated in a study of the financial consequences of the illness. Except for two social class I families who declined to take part, the sample was representative of the childhood cancer population and families were of similar socioeconomic status to the general population. During the first, inpatient, week week of treatment the sum of income lost plus additional expenditure exceeded 50% of total income in over 45% of families. During a subsequent week of outpatient treatment, loss of income plus additional expenditure amounted to more than 20% of income in over half the families. These problems affected all the groups studied and were not confined to lower paid or those living furthest from the centre. Financial help was available from charitable sources and the DHSS towards travel, extra nourishment, and heating costs but could not be obtained to compensate for loss of earnings. The families of children who died had difficulty in meeting the cost of funerals. Families of children with cancer need more help than is at present available, especially to offset loss of income and the cost of funerals.
1980年,在73个前来为患癌儿童寻求治疗的家庭中,有59个家庭参与了一项关于该疾病经济影响的研究。除了两个拒绝参与的社会阶层I家庭外,该样本代表了儿童癌症患者群体,且家庭的社会经济地位与普通人群相似。在治疗的第一周住院期间,超过45%的家庭损失的收入加上额外支出超过了总收入的50%。在随后的门诊治疗周,超过一半的家庭损失的收入加上额外支出超过了收入的20%。这些问题影响了所有研究群体,并不局限于低收入者或居住在离中心最远的人群。慈善机构和卫生与社会保障部(DHSS)可为旅行、额外营养和取暖费用提供经济援助,但无法获得用于弥补收入损失的援助。孩子死亡的家庭难以承担葬礼费用。患癌儿童的家庭需要比目前可得的更多帮助,尤其是用于抵消收入损失和葬礼费用。