Mulhern R K, Lauer M E, Hoffmann R G
Pediatrics. 1983 May;71(5):743-7.
Twenty-four families who had participated in a Home Care Program for children terminally ill with cancer and 13 families of similar children who had died in the hospital completed inventories on parent and sibling personality as well as family functioning three to 29 months after the child's death. Parents of patients who received terminal care in the hospital were more anxious, depressed, and defensive and had greater tendencies toward somatic and interpersonal problems than parents of patients in the Home Care Program. Siblings of patients who received terminal care in the hospital were more emotionally inhibited, withdrawn, and fearful than their counterparts in the Home Care Program. Although some group differences in parental personality may have antedated terminal care, these results confirm parental reports of more adequate family adjustment following participation in a structured Home Care Program.
24个参与了针对身患绝症儿童的家庭护理项目的家庭，以及13个孩子在医院去世的类似患儿家庭，在孩子去世3至29个月后完成了关于父母及兄弟姐妹性格以及家庭功能的问卷调查。在医院接受临终护理的患儿的父母比参与家庭护理项目的患儿的父母更加焦虑、抑郁、有戒心，并且有更大的躯体和人际问题倾向。在医院接受临终护理的患儿的兄弟姐妹比家庭护理项目中的患儿的兄弟姐妹在情绪上更加压抑、孤僻和恐惧。尽管父母性格上的一些群体差异可能在临终护理之前就已存在，但这些结果证实了父母们关于参与结构化家庭护理项目后家庭适应更良好的报告。
