Bullock M
Orthop Clin North Am. 1981 Jan;12(1):193-200.
Many parents of children with severe physical and mental deficits appear to be in conflict between two ambivalent emotions, wanting to live with their child and needing to be relieved from their child's constant suffering. This internal struggle may become a life-long "grief-relief process" for the parents that is manageable but unresolved. The emotional conflict may result in a subconscious or conscious death wish for the child. The conflict reaches its peak when etiology, surgery, and prognosis are discussed and when the child dies. It has been noted that with the death of the child there may be a rapid movement from grief to a sense of relief. This has been referred to as the "grief-relief phenomenon." Though relief appears soon, the period of bereavement may be long and painful. Consequently, the importance of long-term follow-up has been emphasized. Practical suggestions have been offered to allied health professionals working with these parents on a daily basis. This article has concerned itself primarily with the emotional adjustment of parents to children with severe deficits. The grief-relief phenomenon may also be applicable in relation to other populations, such as elderly or terminally ill patients who are constantly in pain and suffering.
许多患有严重身心缺陷儿童的家长似乎在两种矛盾的情绪之间挣扎，既想与孩子一起生活，又希望从孩子持续的痛苦中解脱出来。这种内心的挣扎可能会成为家长们一生的“悲伤-解脱过程”，这个过程虽可应对但并未解决。这种情感冲突可能会导致对孩子下意识或有意识的死亡愿望。当讨论病因、手术和预后时以及孩子死亡时，冲突达到顶峰。人们已经注意到，随着孩子的死亡，可能会迅速从悲伤转变为解脱感。这被称为“悲伤-解脱现象”。尽管解脱感很快出现，但丧亲期可能漫长而痛苦。因此，强调了长期随访的重要性。已经为每天与这些家长打交道的相关健康专业人员提供了实用建议。本文主要关注家长对严重缺陷儿童的情绪调适。悲伤-解脱现象也可能适用于其他人群，比如长期处于疼痛和痛苦中的老年人或绝症患者。
