Lineberger H P
Gen Hosp Psychiatry. 1981 Jun;3(2):157-63. doi: 10.1016/0163-8343(81)90058-x.
The incidence and variety of social dysfunction in one hemophilia clinic patient population were identified through questionnaires completed by professionals; comparison with other hemophilia populations, as cited in the literature, revealed only slight differences. All population studies show a high incidence of social dysfunction, with little change through the years. Several apparent reasons for these findings in our patient population are: (a) the full effects of home treattment have not yet been felt or tabulated because questionnaires were completed during transition years when the rate of home treament went for 13% to 48%, (b) the complications of treatment are high, and (c) supportive educational and psychiatric services are scarce. A reassessment of social functioning of our patient population would be appropriate in six months to a year from now, to assess the impact of increased home treatment. Inhibitor patients in our clinic worked as frequently as other hemophiliacs and showed a slightly lower incidence of disability pay. Figures on social problems of inhibitor patients have not been found elsewhere in the literature.
通过专业人员填写的问卷确定了某一血友病门诊患者群体中社会功能障碍的发生率和种类；与文献中引用的其他血友病群体相比，差异不大。所有人群研究都表明社会功能障碍发生率很高，多年来变化不大。在我们的患者群体中，这些发现的几个明显原因是：(a) 家庭治疗的全面效果尚未显现或统计，因为问卷是在家庭治疗率从13%升至48%的过渡年份完成的，(b) 治疗并发症很高，(c) 支持性教育和精神科服务稀缺。从现在起六个月到一年后，对我们患者群体的社会功能进行重新评估将是合适的，以评估增加家庭治疗的影响。我们诊所的抑制物患者工作频率与其他血友病患者相同，残疾抚恤金发生率略低。文献中其他地方未发现抑制物患者社会问题的数据。
