Clyman R I, Green C, Rowe J, Mikkelsen C, Ataide L
Crit Care Med. 1980 Apr;8(4):215-8. doi: 10.1097/00003246-198004000-00004.
Thirty-five families were interviewed by members of the intensive care nursery staff 2-4 months after the death of their newborn. Of the families interviewed, 74% wanted to review the events leading to their child's death and ask questions about information they already knew. Most families who were interested in the autopsy findings used the results to find out "how normal everything else was." Topics frequently discussed by parents involved feelings of guilt and problems that arose after the infant's death (isolation by friends, somatic complaints, marital and sexual problems, memories of prior losses, problems with siblings and disposal of baby's things). One-third of the families were felt to need continuing emotional support due to their inability to assume previously accepted responsibilities. For many families, the physician may be the only individual who can tolerate listening to their distress.
重症监护病房的工作人员在新生儿死亡2至4个月后,对35个家庭进行了访谈。在接受访谈的家庭中,74%的家庭希望回顾导致孩子死亡的事件,并就他们已经了解的信息提出问题。大多数对尸检结果感兴趣的家庭利用这些结果来弄清楚“其他一切情况有多正常”。父母们经常讨论的话题包括内疚感以及婴儿死亡后出现的问题(朋友的疏离、身体不适、婚姻和性方面的问题、对先前失去亲人的回忆、与兄弟姐妹的问题以及婴儿物品的处理)。三分之一的家庭因无法承担以前认可的责任而被认为需要持续的情感支持。对许多家庭来说,医生可能是唯一能够忍受倾听他们痛苦的人。