Redman Hayley, Clancy Marie, Thomas Felicity
Wellcome Centre for Cultures and Environments of Health, University of Exeter, The Queens Drive, Exeter EX4 4QJ, UK.
Academy of Nursing, University of Exeter, Exeter, UK.
Palliat Care Soc Pract. 2024 Jan 8;18:26323524231222499. doi: 10.1177/26323524231222499. eCollection 2024.
Although there are known disparities in neonatal and perinatal deaths across cultural groups, less is known about how cultural diversity impacts neonatal palliative care. This article critically reviews available literature and sets out key questions that need to be addressed to enhance neonatal palliative care provision for culturally diverse families. We begin by critically reviewing the challenges to recording, categorizing and understanding data which need to be addressed to enable a true reflection of the health disparities in neonatal mortality. We then consider whose voices frame the current neonatal palliative care agenda, and, importantly, whose perspectives are missing; what this means in terms of limiting current understanding and how the inclusion of diverse perspectives can potentially help address current inequities in service provision. Utilizing these insights, we make recommendations towards setting a research agenda, including key areas for future enquiry and methodological and practice-based considerations.
尽管不同文化群体在新生儿和围产期死亡方面存在已知的差异，但关于文化多样性如何影响新生儿姑息治疗的了解却较少。本文批判性地回顾了现有文献，并提出了一些关键问题，这些问题需要得到解决，以加强为文化背景各异的家庭提供新生儿姑息治疗。我们首先批判性地审视记录、分类和理解数据方面的挑战，这些挑战需要解决，以便真实反映新生儿死亡率方面的健康差异。然后，我们思考是谁的声音塑造了当前的新生儿姑息治疗议程，重要的是，哪些人的观点被遗漏了；这在限制当前理解方面意味着什么，以及纳入不同观点如何有可能帮助解决当前服务提供中的不公平问题。利用这些见解，我们对制定研究议程提出建议，包括未来研究的关键领域以及基于方法和实践的考虑因素。
