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童年起慢性身体疾病对成年生活的社会影响。

The social effects in adult life of chronic physical illness since childhood.

作者信息

Kokkonen J

机构信息

Department of Paediatrics, Oulu University Central Hospital, Finland.

出版信息

Eur J Pediatr. 1995 Aug;154(8):676-81. doi: 10.1007/BF02079077.

Abstract

UNLABELLED

An unselected group of 487 (222 females, 265 males) patients with juvenile onset chronic physical disorders was studied at the age of 19-25 years for their social outcome and compared with an age-matched group of 202 physically healthy controls. The interview covered both comprehensive and vocational schooling, data on their employment status, relationship to parents and sexual development in detail. The overall social maturation index showed poor social maturation in patients more often than in the controls. At the time of the study 23% of the patients and 11% of the controls had no vocational education or were not on their way to gaining it. Excluding those with a disability pension (10%), working experience, employment status and unemployment were fairly similar in both groups. Sexual development was delayed more often in the patients than in the controls and the patients were significantly more often unmarried and living in the same household as their parents. However, social and psychological factors accumulating in excess in the patient group were observed more significant than the physical disease to the delayed social maturation.

CONCLUSION

Among patients with chronic physical disorders there is a minor group with delayed social maturation. Those at risk can easily be recognized even before adolescence in order to offer them and their parents support to achieve reasonable social development in early adulthood.

摘要

未标注

对一组未经挑选的487名(222名女性,265名男性)患有青少年期慢性身体疾病的患者进行了研究,在他们19至25岁时评估其社会结局,并与一组年龄匹配的202名身体健康的对照者进行比较。访谈涵盖了全面教育和职业教育、他们的就业状况数据、与父母的关系以及详细的性发育情况。总体社会成熟指数显示,患者的社会成熟度低于对照组。在研究时,23%的患者和11%的对照者没有接受职业教育或尚未走上接受职业教育的道路。排除领取残疾抚恤金的患者(10%)后,两组的工作经历、就业状况和失业率相当相似。患者的性发育延迟情况比对照者更常见,并且患者未婚且与父母同住的情况明显更为常见。然而,在患者组中积累过多的社会和心理因素对社会成熟延迟的影响比身体疾病更为显著。

结论

在患有慢性身体疾病的患者中,有一小部分人的社会成熟延迟。即使在青春期之前,也可以很容易地识别出那些有风险的人,以便为他们及其父母提供支持,使其在成年早期实现合理的社会发展。

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