Parker L S
Department of Human Genetics, University of Pittsburgh, PA 15261, USA.
J Med Philos. 1995 Jun;20(3):313-37. doi: 10.1093/jmp/20.3.313.
This paper illustrates a role that bioethics should play in developing and criticizing protocols for breast cancer genetic screening. It demonstrates how a critical bioethics, using approaches and reflecting concerns of contemporary philosophy of science and science studies, may critically interrogate the normative and conceptual schemes within which ethical considerations about such screening protocols are framed. By exploring various factors that influence the development of such protocols, including politics, cultural norms, and conceptions of disease, this paper and the critical bioethics' approach it endorses illuminate and critically assess some of the competing worldviews informing protocol development. One of the frequently neglected worldviews in traditional bioethics' treatment of protocols concerning breast care is constituted by women's own views of their breasts and breast cancer, both within the technologically-oriented social practice of American medicine and in light of the social construction of their breasted experience in American society. This paper attempts to redress and critically assess this neglect on the part of traditional bioethics. Finally, in contrast to traditional bioethics, critical bioethics critically interrogates its own normative and conceptual commitments. In this final capacity, a critical bioethics' approach makes a valuable contribution to the evolution of bioethics.
本文阐述了生物伦理学在制定和批判乳腺癌基因筛查方案中应发挥的作用。它展示了一种批判性生物伦理学如何运用当代科学哲学和科学研究的方法并反映其关切,从而对那些围绕此类筛查方案的伦理考量所构建的规范和概念框架进行批判性审视。通过探究影响此类方案制定的各种因素,包括政治、文化规范和疾病观念,本文及其所赞同的批判性生物伦理学方法阐明并批判性地评估了一些为方案制定提供依据的相互竞争的世界观。在美国医学以技术为导向的社会实践中,以及鉴于美国社会对其有乳房体验的社会建构,女性自身对乳房和乳腺癌的看法构成了传统生物伦理学在处理乳房护理相关方案时经常被忽视的世界观之一。本文试图纠正并批判性地评估传统生物伦理学在这方面的忽视。最后,与传统生物伦理学不同,批判性生物伦理学对自身的规范和概念承诺进行批判性审视。以这种最后的身份,批判性生物伦理学方法为生物伦理学的发展做出了宝贵贡献。