Sloper P, Turner S
Hester Adrian Research Centre, University of Manchester.
Dev Med Child Neurol. 1993 Sep;35(9):816-25. doi: 10.1111/j.1469-8749.1993.tb11733.x.
Parental satisfaction with the process of disclosure of disability was investigated in interviews with 103 parents of children with severe physical disability. Only 37 per cent of parents were satisfied with disclosure. Parents were more likely to be satisfied if they felt that the professional carrying out the disclosure had a sympathetic, understanding and approachable manner, and was direct and communicated well; if they had been given sufficient information and opportunities to ask questions; and if they were from a manual social-class background. Factors in the procedure of the disclosure, such as the timing, were not significantly related to satisfaction. These results demonstrate the importance of the parent-professional interaction and point towards an increased emphasis on communication skills in medical training.
通过对103名重度身体残疾儿童的家长进行访谈，调查了家长对残疾信息披露过程的满意度。只有37%的家长对信息披露感到满意。如果家长认为进行信息披露的专业人员态度和蔼、善解人意且平易近人，沟通直接且良好；如果他们得到了足够的信息和提问机会；以及如果他们来自体力劳动者社会阶层背景，那么他们更有可能感到满意。信息披露过程中的因素，如时间安排，与满意度没有显著关系。这些结果表明了家长与专业人员互动的重要性，并指出在医学培训中应更加重视沟通技巧。
