Kanabar D J, Attard-Montalto S, Saha V, Kingston J E, Malpas J E, Eden O B
Academic Department of Paediatric Oncology, St Bartholomew's Hospital, London, England.
Pediatr Hematol Oncol. 1995 Jan-Feb;12(1):29-36. doi: 10.3109/08880019509029525.
A questionnaire study was carried out in a group of survivors of childhood cancer to assess their quality of life. The questionnaire was sent to 30 survivors who had completed treatment with megatherapy followed by autologous bone marrow rescue at St Bartholomew's Hospital, London. Of the 28 respondents (93%), in 27 (96%) the quality of life was judged to be good, with 11 of these 27 (40%) having no disability whatsoever and a further 9 (33%) reporting only minimal disability. The other 7 patients had moderate to severe disabilities, with pain and depression remaining ongoing problems, and some adolescents felt that they were unable to cope with everyday life alongside their peers. Nine parents and 14 of the children themselves expressed anxiety about the previous illness. The study shows that, by using a postal method, a satisfactory assessment of quality of life in survivors of childhood cancer can be made.
对一组儿童癌症幸存者进行了问卷调查研究，以评估他们的生活质量。问卷被发送给30名在伦敦圣巴塞洛缪医院完成大剂量疗法并接受自体骨髓挽救治疗的幸存者。在28名受访者（93%）中，27名（96%）的生活质量被判定为良好，其中这27名中的11名（40%）没有任何残疾，另有9名（33%）仅报告有轻微残疾。其他7名患者有中度至重度残疾，疼痛和抑郁仍然是持续存在的问题，一些青少年觉得他们无法与同龄人一起应对日常生活。9名家长和14名儿童本人对之前的疾病表示焦虑。该研究表明，通过邮寄方式，可以对儿童癌症幸存者的生活质量进行令人满意的评估。
