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[脊柱裂和创伤性截瘫青少年对残疾的适应实证结果]

[Empirical results of adjustment to disability by adolescents with spina bifida and traumatic paraplegia].

作者信息

Voll R, Mayer U, Krumm B, Fichtner H J

机构信息

Rehabilitationszentrum für Kinder und Jugendliche, Neckargemünd.

出版信息

Rehabilitation (Stuttg). 1995 Feb;34(1):8-15.

PMID:7716341
Abstract

Between June 1991 and June 1992, a total of 39 rehabilitees aged 16 to 25 years were examined, i.e., 21 patients suffering from spina bifida and 18 patients suffering from traumatic paraplegia. Diagnostic instruments used were the Freiburg questionnaire on coping with illness (FKV 102), Goldberg et al's questionnaire for the evaluation of subjective wellbeing regarding health, and a self-constructed questionnaire for evaluating satisfaction with rehabilitation. Medical interviews on the present state of health and the present situation were held with each patient. The level of paralysis was taken as an indicator of the motor handicap present. The patients examined showed distinctly less confidence in doctors than adults do. From a subjective point of view, however, the confidence in doctors was good: among the coping strategies chosen, the compliance strategies ranked first and second, respectively, in the two groups. The coping strategy of "cognitive avoidance and dissimilation" is distinctly less common among spina bifida patients than among patients with traumatic paraplegia. They are less inclined to hope for a miracle, and take their handicap much more seriously than adolescents suffering from traumatic paraplegia. The higher the level of paraplegia, the more use is made of the coping strategy of "emotional control and social withdrawal". Regressive tendencies and depressive modes of coping were equally present in both groups. When investigating satisfaction with rehabilitation and with the own person, both groups showed very high satisfaction with the physical independence achieved and the possibilities of acting independently.(ABSTRACT TRUNCATED AT 250 WORDS)

摘要

1991年6月至1992年6月期间,共对39名年龄在16至25岁之间的康复者进行了检查,即21名患有脊柱裂的患者和18名患有外伤性截瘫的患者。使用的诊断工具包括弗莱堡应对疾病问卷(FKV 102)、戈德堡等人的关于健康主观幸福感评估问卷,以及一份自行编制的用于评估康复满意度的问卷。对每位患者进行了关于健康现状和当前情况的医学访谈。瘫痪程度被用作存在运动障碍的指标。接受检查的患者对医生的信心明显低于成年人。然而,从主观角度来看,对医生的信心良好:在所选的应对策略中,顺应策略在两组中分别排名第一和第二。“认知回避与异化”的应对策略在脊柱裂患者中明显比外伤性截瘫患者中少见。他们不太倾向于期待奇迹,并且比外伤性截瘫青少年更认真地对待自己的残疾。截瘫程度越高,“情绪控制与社交退缩”的应对策略使用得越多。两组中均存在退行倾向和抑郁应对方式。在调查对康复和对自身的满意度时,两组对所实现的身体独立性和独立行动的可能性都表现出非常高的满意度。(摘要截选至250字)

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