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与多发性硬化症共处:慢性悲伤的经历

Living with multiple sclerosis: the experience of chronic sorrow.

作者信息

Hainsworth M A

机构信息

Department of Nursing, Rhode Island College, Providence 02908.

出版信息

J Neurosci Nurs. 1994 Aug;26(4):237-40. doi: 10.1097/01376517-199408000-00008.

DOI:10.1097/01376517-199408000-00008
PMID:7814916
Abstract

This qualitative nursing research study investigated the occurrence of chronic sorrow in individuals with multiple sclerosis. Using the Burke/NCRCS Chronic Sorrow Questionnaire (Individual Version), 10 participants were interviewed. Data were analyzed in collaboration with one other researcher. Of the participants, 80% evidenced the presence of chronic sorrow in their lives. Data clearly indicated that feelings of chronic sorrow occurred periodically over a protracted span of time when some event reminded participants of their chronic situation. The nursing roles of empathetic presence and caring professional helped participants the most in dealing with their feelings of chronic sorrow.

摘要

这项质性护理研究调查了多发性硬化症患者慢性悲伤的发生情况。使用伯克/全国康复咨询中心慢性悲伤问卷(个人版),对10名参与者进行了访谈。数据由另一位研究人员协助进行分析。在参与者中,80%的人在生活中表现出慢性悲伤。数据清楚地表明,当某些事件使参与者想起自己的慢性病况时,慢性悲伤情绪会在很长一段时间内周期性出现。共情陪伴和关怀专业的护理角色在帮助参与者应对慢性悲伤情绪方面作用最大。

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Living with multiple sclerosis: the experience of chronic sorrow.与多发性硬化症共处:慢性悲伤的经历
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