Järbrink Krister, Fombonne Eric, Knapp Martin
Centre for the Economics of Mental Health, Health Service Research Department, The David Goldberg Centre, Institute of Psychiatry, De Crespigny Park, London SE5 8AF, UK.
J Autism Dev Disord. 2003 Aug;33(4):395-402. doi: 10.1023/a:1025058711465.
The aim of this study was to carry out a preliminary examination of a research instrument developed specifically to collect cost information for individuals with autistic spectrum disorder. There is very little cost information on children or adults with autism or autism-related disorder, and no study appears to have carried out a specific cost collection in this area. Although some global cost estimates can be made, little is known about the cost implications of parental burden. By using different techniques to collect indirect costs, the study outlines a functional methodology. Results from this small pilot study point to considerable economic burden for parents and give some indication of the associated costs of autistic spectrum disorder.
本研究的目的是对专门为收集自闭症谱系障碍患者的成本信息而开发的一种研究工具进行初步检验。关于患有自闭症或自闭症相关障碍的儿童或成人的成本信息非常少,而且似乎没有研究在该领域进行过具体的成本收集。尽管可以做出一些总体成本估计,但对于父母负担的成本影响却知之甚少。通过使用不同技术收集间接成本,本研究概述了一种实用的方法。这项小型试点研究的结果表明,父母面临着相当大的经济负担,并给出了自闭症谱系障碍相关成本的一些迹象。