Warady B A
Section of Pediatric Nephrology, Children's Mercy Hospital, University of Missouri-Kansas City 64108.
Pediatr Nephrol. 1994 Jun;8(3):387-90. doi: 10.1007/BF00866373.
Therapeutic camping experiences for children with end-stage renal disease (ESRD) have proliferated in the United States and abroad. This report is based on the results of a survey designed to accumulate data on the development and implementation of 20 such camps. Children attending camp ranged in age from 1 year to 19 years. Single disease-specific camps were most common, while camps for children with a variety of chronic illnesses, including ESRD, and mainstream camps were also conducted. Facilities were available for hemodialysis and continuous ambulatory peritoneal dialysis, but not automated peritoneal dialysis, in the majority of surveyed camps. Dialysis nurses, pediatric nephrologists, dietitians and social workers were the medical personnel that most frequently participated in the camps. On average, 32 dialysis/transplant patient campers (range 6-100) attended camp for a 1-week session. Therapeutic camping experiences for children with ESRD are extremely successful and attempts to increase the availability of similar camps should be encouraged.
针对终末期肾病(ESRD)患儿的治疗性露营活动在美国及其他国家和地区日益增多。本报告基于一项调查结果,该调查旨在收集有关20个此类营地的发展与实施情况的数据。参加营地的儿童年龄从1岁至19岁不等。单一疾病特定营地最为常见,同时也举办了针对包括ESRD在内的各种慢性病患儿的营地以及主流营地。在大多数接受调查的营地中,具备血液透析和持续性非卧床腹膜透析设施,但不具备自动化腹膜透析设施。透析护士、儿科肾病学家、营养师和社会工作者是最常参与营地活动的医务人员。平均而言,32名透析/移植患者露营者(范围为6 - 100人)参加为期1周的营地活动。针对ESRD患儿的治疗性露营活动非常成功,应鼓励增加类似营地的可及性。