Warady B A, Carr B, Hellerstein S, Alon U
Division of Nephrology, Children's Mercy Hospital, Kansas City, Mo.
Child Nephrol Urol. 1992;12(4):212-5.
Residential summer camps exist for children with all varieties of chronic illness with the goal of improving their quality of life. This paper describes the development and implementation of a summer camp for children 9-18 years old who receive long-term peritoneal dialysis or who have received a kidney transplant. Thirty-five to forty children regularly participate in activities such as water olympics, survival hikes and campouts while continuing to receive their medical needs from trained personnel. A study to evaluate the impact of a summer camp revealed less patient hopelessness and improved self-esteem following the 1-week camping experience. Attendance at camp provided the medical staff with a unique perspective of childhood illness, while the period of respite for the parents was uniformly welcomed and may contribute to the prevention of parent burnout. It is hoped that the success of this camp and others like it will lead to the development of similar experiences for other children with chronic disease.
针对患有各种慢性病的儿童设有寄宿制夏令营，目的是提高他们的生活质量。本文描述了一个为9至18岁接受长期腹膜透析或已接受肾移植的儿童举办的夏令营的开展和实施情况。35至40名儿童定期参加水上奥运会、生存徒步旅行和露营等活动，同时继续从训练有素的人员那里获得医疗护理。一项评估夏令营影响的研究表明，经过为期1周的露营体验后，患者的绝望情绪减少，自尊心得到提高。参加夏令营让医务人员对儿童疾病有了独特的认识，同时父母的喘息期也受到一致欢迎，这可能有助于预防父母倦怠。希望这个夏令营以及其他类似夏令营的成功能够促使为其他慢性病儿童开发类似的体验活动。
