Brewster D, Crichton J, Muir C
Scottish Cancer Intelligence Unit, Information & Statistics Division of the Common Services Agency for the National Health Service in Scotland, Edinburgh, UK.
Br J Cancer. 1994 Nov;70(5):954-9. doi: 10.1038/bjc.1994.428.
In order to assess the accuracy of Scottish cancer registration data, a random sample of 2,200 registrations, attributed to the year 1990, was generated. Relevant medical records were available for review in 2,021 (92%) cases. Registration details were reabstracted from available records and compared with data in the registry. Discrepancies in identifying items of data (surname, forename, sex and date of birth) were found in 3.5% of cases. Most were trivial and would not disturb record linkage. Discrepancy rates of 7.1% in post code of residence at the time of diagnosis (excluding differences arising through boundary changes), 11.0% in anniversary date (excluding differences of 6 weeks or less), 7.7% in histological verification status, 5.4% in ICD-9 site codes (the first three digits) and 14.5% in ICD-O morphology codes (excluding 'inferred' morphology codes) were recorded. Overall, serious discrepancies were judged to have occurred in 2.8% of cases. In many respects, therefore, Scottish cancer registration data show a high level of accuracy that compares favourably to the reported accuracy of the few other cancer registries undertaking such analyses.
为评估苏格兰癌症登记数据的准确性，生成了一份随机抽取的、归属于1990年的2200份登记样本。在2021例（92%）病例中可获取相关医疗记录以供审查。登记细节从现有记录中重新提取并与登记处的数据进行比较。在3.5%的病例中发现了数据项（姓氏、名字、性别和出生日期）识别方面的差异。大多数差异微不足道，不会干扰记录链接。记录显示，诊断时居住邮政编码的差异率为7.1%（不包括因边界变化产生的差异），周年日期的差异率为11.0%（不包括6周或更短时间的差异），组织学验证状态的差异率为7.7%，ICD - 9部位编码（前三位数字）的差异率为5.4%，ICD - O形态学编码的差异率为14.5%（不包括“推断”的形态学编码）。总体而言，判定2.8%的病例存在严重差异。因此，在许多方面，苏格兰癌症登记数据显示出较高的准确性，与其他少数进行此类分析的癌症登记处报告的准确性相比具有优势。
