Brewster D H, Crichton J, Harvey J C, Dawson G
Scottish Cancer Registry, Information and Statistics Division, Edinburgh, Scotland.
Public Health. 1997 Sep;111(5):339-43. doi: 10.1016/s0033-3506(97)00065-6.
To assess completeness of case ascertainment by the Scottish Cancer Registry for the year 1992, we assembled a collection of databases containing potential registrations (excluding non-melanoma skin tumours and non-invasive neoplasms) from 14 separate sources relating to the population covered by one of the five regional registries. Apparently missed registrations were identified by linkage of these databases to cancer registration records. Their eligibility for registration was determined by reference in medical records, or when these were unavailable, by reference to the local Community Health Index (to establish residency at the time of diagnosis) in conjunction with the text of the original pathology report and/or the original death certificate. Misclassifications of site or incidence year were not regarded as missed cases. Of 517 apparently missed cancer registrations, 66 cases (3.5% of the revised total number of registrations of malignant neoplasms other than non-melanoma skin tumours for the study area in 1992) should have been registered as new independent primary malignant neoplasms, giving an overall estimate of completeness of 96.5%. The fact that so many apparently missed registrations were not eligible for registration illustrates the limitations of passive registration. Ascertainment of cases by the Scottish Cancer Registry appears to be high for most sites and compares favourably to the figures reported by registries outside Scotland.
为评估苏格兰癌症登记处对1992年病例确诊的完整性，我们收集了一系列数据库，这些数据库包含来自14个不同来源的潜在登记信息（不包括非黑色素瘤皮肤肿瘤和非侵袭性肿瘤），涉及五个区域登记处之一所覆盖的人群。通过将这些数据库与癌症登记记录相链接，识别出明显遗漏的登记信息。其登记资格通过查阅病历确定，若病历不可用，则结合原始病理报告文本和/或原始死亡证明，参考当地社区健康指数（以确定诊断时的居住情况）来确定。部位或发病年份的错误分类不视为遗漏病例。在517例明显遗漏的癌症登记中，66例（占1992年研究区域非黑色素瘤皮肤肿瘤以外恶性肿瘤登记修订总数的3.5%）应作为新的独立原发性恶性肿瘤进行登记，总体完整性估计为96.5%。如此多明显遗漏的登记无资格登记这一事实说明了被动登记的局限性。苏格兰癌症登记处对大多数部位的病例确诊率似乎很高，与苏格兰以外登记处报告的数据相比具有优势。
