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与癌症共存:有着非凡勇气的孩子们。

Living with cancer: children with extraordinary courage.

作者信息

Hockenberry-Eaton M, Minick P

机构信息

Texas Children's Hospital, Houston.

出版信息

Oncol Nurs Forum. 1994 Jul;21(6):1025-31.

PMID:7971409
Abstract

PURPOSE

To gain an understanding of the personal experience of school-age children with cancer.

DESIGN

Phenomenologic.

SETTING

A comprehensive pediatric cancer center in the southeastern United States.

SAMPLE

21 children (11 males and 10 females) 7-13 years of age receiving treatment for a variety of cancers.

MAIN RESEARCH VARIABLES

Children's thoughts and feelings about their cancer and its treatment.

FINDINGS

Common themes about what provided strength for these children during treatment emerged: "knowing" (what to expect, information about cancer, others with cancer), "caring" (for self, being cared for by family and nurses), "feeling special" (feeling unique and also struggling to feel normal), and "getting used to it" (being brave, accepting things).

CONCLUSIONS

Children can demonstrate a pattern of strength and the ability to bounce back, despite stressful situations. In spite of differences in cognitive development, children can be helped to develop strength in the face of adversity.

IMPLICATIONS FOR NURSING

Nurses can assist children with cancer by developing interventions that provide age-appropriate information, support their perceived specialness, and integrate the use of new interventions that decrease painful treatments.

摘要

目的

了解学龄期癌症患儿的个人经历。

设计

现象学研究。

地点

美国东南部一家综合性儿科癌症中心。

样本

21名7至13岁因各种癌症接受治疗的儿童(11名男性,10名女性)。

主要研究变量

儿童对自身癌症及其治疗的想法和感受。

研究结果

出现了关于治疗期间是什么给这些儿童带来力量的共同主题:“知晓”(知道会发生什么、有关癌症的信息、其他癌症患者)、“关爱”(关爱自己、得到家人和护士的照顾)、“感觉特别”(感觉独特且努力想要感觉正常)以及“习惯它”(勇敢、接受现实)。

结论

尽管处境艰难,儿童仍能展现出一种力量模式和恢复能力。尽管认知发展存在差异,但可以帮助儿童在面对逆境时培养力量。

对护理工作的启示

护士可以通过制定干预措施来帮助癌症患儿,这些措施应提供适合其年龄的信息,支持他们所感受到的独特性,并采用新的干预措施以减少痛苦的治疗。

相似文献

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Living with cancer: children with extraordinary courage.与癌症共存:有着非凡勇气的孩子们。
Oncol Nurs Forum. 1994 Jul;21(6):1025-31.
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A substantive theory of Keeping the Spirit Alive: the Spirit Within children with cancer and their families.“让精神延续”的实质理论:癌症患儿及其家庭内在的精神
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Nurse experiences as cancer survivors: part I-personal.护士作为癌症幸存者的经历:第一部分——个人经历。
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Cancer symptom transition periods of children and families.儿童及其家庭的癌症症状过渡期。
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Struggling with paradoxes: the process of spiritual development in women with cancer.与悖论作斗争:癌症女性的精神发展过程
Oncol Nurs Forum. 2001 Nov-Dec;28(10):1534-44.
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Expectations and beliefs about children's cancer symptoms: perspectives of children with cancer and their families.对儿童癌症症状的期望与信念:癌症患儿及其家庭的观点
Oncol Nurs Forum. 2003 May-Jun;30(3):479-91. doi: 10.1188/03.ONF.479-491.
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Living with a machine: the experience of the child who is ventilator dependent.与机器相伴:依赖呼吸机的儿童的经历
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