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[父母关于患有先天性疾病的婴儿死亡的经历]

[Parents' experience of the death of their baby with congenital disorder].

作者信息

de Kock J, Nolte A W, Dörfling C S

出版信息

Curationis. 1994 Aug;17(3):8-13.

PMID:7987963
Abstract

The purpose of this study is to determine the experiences of the parents after the death of a congenital abnormal baby. Parents who have lost a baby go through a process of grief. This also applies to parents of a baby with congenital abnormalities. Parents whose congenital abnormal baby dies, not only grieve because of the abnormality of their baby, but also because it died. Unstructured in-depth interviews were held with six couples within a year after the death of their babies. The experiences of the six couples were afterwards compared. A literature study was undertaken in order to determine what the conclusions of other researchers field were. The result of the literature study was compared with that of the present study. Recommendations are made at the end of this study on the practical applications, education and further research that can be undertaken on this subject.

摘要

本研究的目的是确定先天性异常婴儿死亡后其父母的经历。失去婴儿的父母会经历一个悲伤的过程。这也适用于患有先天性异常的婴儿的父母。其先天性异常婴儿死亡的父母,不仅因其婴儿的异常情况而悲伤,还因其死亡而悲伤。在婴儿死亡后的一年内,对六对夫妇进行了无结构的深入访谈。之后对这六对夫妇的经历进行了比较。开展了一项文献研究,以确定其他研究领域的结论是什么。将文献研究的结果与本研究的结果进行了比较。本研究末尾就该主题可进行的实际应用、教育和进一步研究提出了建议。

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[Parents' experience of the death of their baby with congenital disorder].[父母关于患有先天性疾病的婴儿死亡的经历]
Curationis. 1994 Aug;17(3):8-13.
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