Baker G A, Jacoby A, Smith D F, Dewey M E, Chadwick D W
Department of Neurosciences, Walton Hospital, Liverpool, England.
Epilepsia. 1994 May-Jun;35(3):591-6. doi: 10.1111/j.1528-1157.1994.tb02479.x.
We have been involved in developing a health-related quality-of-life model for use as an outcome measure in epilepsy. As part of the further development of this model, we have developed a measure of life fulfillment. This scale is based on methods previously described by Krupinski in 1980. The value of Krupinski's approach is the opportunity for patients to weight the numerous aspects of their quality of life and assess the discrepancy between their actual and desired circumstances. The life fulfillment scale has been shown to be reliable (alpha = 0.7) and valid. The scale is currently being applied to several clinical studies in epilepsy. We believe that the scale provides a valuable contribution to our health-related quality-of-life model.
我们一直致力于开发一种与健康相关的生活质量模型,用作癫痫的一项结果指标。作为该模型进一步开发的一部分,我们制定了一项生活满意度衡量标准。该量表基于克鲁平斯基在1980年之前描述的方法。克鲁平斯基方法的价值在于,患者有机会权衡其生活质量的诸多方面,并评估实际情况与期望情况之间的差异。生活满意度量表已被证明是可靠的(阿尔法系数=0.7)且有效。该量表目前正应用于多项癫痫临床研究。我们认为,该量表对我们与健康相关的生活质量模型做出了宝贵贡献。