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一种为癫痫手术患者制定生活质量测量方法的程序。

A procedure for developing a quality-of-life measure for epilepsy surgery patients.

作者信息

Vickrey B G

机构信息

Department of Neurology, University of California, School of Medicine, Los Angeles 90024-1769.

出版信息

Epilepsia. 1993;34 Suppl 4:S22-7. doi: 10.1111/j.1528-1157.1993.tb05912.x.

DOI:10.1111/j.1528-1157.1993.tb05912.x
PMID:8348900
Abstract

In 1990, the NIH Consensus Conference Panel on epilepsy surgery called for the development and use of reliable and valid health-related quality-of-life (HRQOL) measures in epilepsy surgery studies. A HRQOL measure for epilepsy surgery patients has been developed and evaluated. The procedure, which could also be used to develop HRQOL measures for other neurological diseases, entails the following steps: (a) specify desired characteristics of the measure; (b) identify relevant HRQOL areas by reviewing the literature; (c) assemble generic core items and disease-specific supplementary items; (d) pilot test and revise the measure; (e) administer revised measure items to a large sample of epilepsy surgery patients; (f) perform item analysis to evaluate hypothesized item placement within scales; and (g) assess the reliability and validity of the scales. The product of this process, the Epilepsy Surgery Inventory (ESI)-55, is a self-report measure of 11 dimensions of HRQOL. It is brief, comprehensive, and reliable; preliminary evidence supports its validity.

摘要

1990年,美国国立卫生研究院癫痫手术共识会议小组呼吁在癫痫手术研究中开发并使用可靠且有效的健康相关生活质量(HRQOL)测量方法。一种针对癫痫手术患者的HRQOL测量方法已被开发并评估。该程序也可用于开发其他神经系统疾病的HRQOL测量方法,包括以下步骤:(a)明确测量方法所需的特征;(b)通过文献回顾确定相关的HRQOL领域;(c)汇集通用核心项目和疾病特异性补充项目;(d)进行预测试并修订测量方法;(e)将修订后的测量项目应用于大量癫痫手术患者样本;(f)进行项目分析以评估假设的项目在量表中的位置;以及(g)评估量表的信度和效度。这一过程的成果,即癫痫手术量表(ESI)-55,是一种对HRQOL的11个维度进行自我报告的测量方法。它简洁、全面且可靠;初步证据支持其效度。

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