患有囊性纤维化的年轻人及其家庭的心理社会功能。
Psychosocial functioning of young adults with cystic fibrosis and their families.
作者信息
Blair C, Cull A, Freeman C P
机构信息
Department of Psychiatry, University of Edinburgh, Royal Edinburgh Hospital, UK.
出版信息
Thorax. 1994 Aug;49(8):798-802. doi: 10.1136/thx.49.8.798.
BACKGROUND
The psychosocial functioning of adolescents and young adults with cystic fibrosis still living in the parental home was investigated. With its proven genetic aetiology cystic fibrosis is an ideal model with which to assess the impact of a chronic and life threatening disorder on family and individual psychological and social functioning.
METHODS
Twenty nine patients with cystic fibrosis and their families were compared with those of 27 patients with anorexia nervosa and 31 well controls. Assessments were made using self reporting, interview, and observational methods.
RESULTS
Most patients with cystic fibrosis were in robust psychological health and only differed from their healthy peers in that they were much less likely to be in employment. Mothers of patients with cystic fibrosis or anorexia nervosa were more likely than the mothers of the well group to be emotionally distressed, although this was not so for fathers. Young people in both illness groups were more likely to have parents with high levels of expressed emotion. Most families of patients with cystic fibrosis had good problem solving abilities.
CONCLUSIONS
In spite of the burden of illness in cystic fibrosis psychological functioning in many respects matches that of well young people.
背景
对仍居住在父母家中的患有囊性纤维化的青少年和青年的心理社会功能进行了调查。鉴于其已证实的遗传病因，囊性纤维化是评估慢性和危及生命的疾病对家庭以及个体心理和社会功能影响的理想模型。
方法
将29名囊性纤维化患者及其家庭与27名神经性厌食症患者及其家庭以及31名健康对照者的家庭进行比较。采用自我报告、访谈和观察方法进行评估。
结果
大多数囊性纤维化患者心理健康状况良好，与健康同龄人相比，唯一的不同在于他们就业的可能性要小得多。患有囊性纤维化或神经性厌食症患者的母亲比健康组的母亲更容易情绪困扰，不过父亲并非如此。两个患病组的年轻人更有可能有情感表达水平较高的父母。大多数囊性纤维化患者家庭具有良好的问题解决能力。
结论
尽管囊性纤维化存在疾病负担，但在许多方面其心理功能与健康年轻人的心理功能相当。
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