Billson A L, Walker D A
Department of Child Health, University Hospital, Nottingham.
Arch Dis Child. 1994 Mar;70(3):200-4. doi: 10.1136/adc.70.3.200.
The health status of 48 survivors of cancer was assessed using a rating system for six attributes: senses, mobility, emotion, cognition, self care, and pain. Paired assessments were made by doctors and patients (or their parents, or both) at routine clinic attendances. Sixteen (33%) assessments by the patient/parent and 19 (40%) assessments by the doctor identified no deficits in health status. The doctors identified fewer deficits in all attributes than the patients/parents, the differences being most marked for subjective attributes. Health status index scores on a scale of 0 (worst health state) to 1 (perfect health) were derived from the rating system and showed good overall agreement between the doctors and the patients/parents. Survivors of neuroaxial tumours tended to have lower scores than other diagnostic groups. This simple, compact system could be used in clinical trials to compare treatment strategies in terms of the health status of survivors. It could also be a valuable tool in the assessment of health status in other areas of paediatrics.
采用一种针对六种属性（感觉、活动能力、情绪、认知、自我护理和疼痛）的评分系统，对48名癌症幸存者的健康状况进行了评估。在常规门诊就诊时，由医生和患者（或其父母，或双方）进行配对评估。患者/父母进行的16项（33%）评估以及医生进行的19项（40%）评估均未发现健康状况存在缺陷。在所有属性方面，医生发现的缺陷比患者/父母少，主观属性方面的差异最为明显。评分系统得出的健康状况指数分数范围为0（最差健康状态）至1（完美健康），显示医生与患者/父母之间总体一致性良好。神经轴肿瘤幸存者的分数往往低于其他诊断组。这种简单、紧凑的系统可用于临床试验，以根据幸存者的健康状况比较治疗策略。它也可能是评估儿科其他领域健康状况的一个有价值的工具。
