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Fully informed consent can be needlessly cruel.

作者信息

Tobias J S, Souhami R L

机构信息

Meyerstein Institute of Clinical Oncology, Middlesex Hospital, London.

出版信息

BMJ. 1993 Nov 6;307(6913):1199-201. doi: 10.1136/bmj.307.6913.1199.

DOI:10.1136/bmj.307.6913.1199
PMID:8135933
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1679294/
Abstract
摘要
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/24cc/1679294/bb46bf34ae1e/bmj00046-0052-a.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/24cc/1679294/bb46bf34ae1e/bmj00046-0052-a.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/24cc/1679294/bb46bf34ae1e/bmj00046-0052-a.jpg

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Fully informed consent can be needlessly cruel.完全知情同意可能会无端地残忍。
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2
Ethics of informed consent.知情同意的伦理问题。
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Human experimentation. Protecting patient autonomy through informed consent.人体实验。通过知情同意保护患者自主权。
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Informed consent in medical research. Journals should not publish research to which patients have not given fully informed consent--with three exceptions.医学研究中的知情同意。期刊不应发表未获得患者充分知情同意的研究——有三个例外情况。
BMJ. 1997 Apr 12;314(7087):1107-11. doi: 10.1136/bmj.314.7087.1107.
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Suspended judgment. Clinical trials of informed consent.暂缓判断。知情同意的临床试验。
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Ethics and medical science: on voluntary participation in biomedical experimentation.伦理与医学科学：论生物医学实验中的自愿参与
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The ethics of randomised controlled trials from the perspectives of patients, the public, and healthcare professionals.从患者、公众和医疗保健专业人员角度看随机对照试验的伦理问题
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Trust, The fragile foundation of contemporary biomedical research.信任，当代生物医学研究的脆弱基石。
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The standard of disclosure in human subject experimentation.人体实验中的披露标准。
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本文引用的文献

1
Arrogance.傲慢。
N Engl J Med. 1980 Dec 25;303(26):1507-11. doi: 10.1056/NEJM198012253032604.
2
Ethics of clinical research: lessons for the future.临床研究伦理：对未来的启示。
BMJ. 1989 Jul 22;299(6693):251-3. doi: 10.1136/bmj.299.6693.251.
3
Of mice but not men. Problems of the randomized clinical trial.只适用于小鼠而非人类。随机临床试验的问题。
血液系统恶性肿瘤患者的决策参与和信息偏好
Blood Adv. 2020 Nov 10;4(21):5492-5500. doi: 10.1182/bloodadvances.2020003044.
4
The research burden of randomized controlled trial participation: a systematic thematic synthesis of qualitative evidence.随机对照试验参与的研究负担：定性证据的系统主题综合分析。
BMC Med. 2020 Jan 20;18(1):6. doi: 10.1186/s12916-019-1476-5.
5
Factors Associated with Poor Satisfaction with Anesthesia in Patients Who Had Previous Surgery: A Retrospective Study.既往接受过手术患者麻醉满意度低的相关因素：一项回顾性研究
Anesth Pain Med. 2019 Oct 30;9(5):e90915. doi: 10.5812/aapm.90915. eCollection 2019 Oct.
6
Intellectual Equipoise and Challenges: Accruing Patients With Advanced Cancer to a Trial Randomizing to Surgical or Nonsurgical Management (SWOG S1316).智力均衡与挑战：将晚期癌症患者纳入一项随机分为手术或非手术治疗的试验（SWOG S1316）。
Am J Hosp Palliat Care. 2020 Jan;37(1):12-18. doi: 10.1177/1049909119851471. Epub 2019 May 23.
7
Preoperative informed consent: is it truly informed?术前知情同意：它真的是知情的吗？
Iran J Public Health. 2012;41(9):25-30. Epub 2012 Sep 1.
8
Attitudes towards palliative care in primary metastatic cancer: a survey among oncologists.初级转移性癌症中对姑息治疗的态度：肿瘤学家的调查。
Wien Klin Wochenschr. 2010 Jan;122(1-2):45-9. doi: 10.1007/s00508-009-1295-3.
9
Patients' perception of quality of pre-operative informed consent in athens, Greece: a pilot study.希腊雅典地区患者对术前知情同意质量的感知：一项初步研究。
PLoS One. 2009 Nov 26;4(11):e8073. doi: 10.1371/journal.pone.0008073.
10
The role of chemotherapy at the end of life: "when is enough, enough?".化疗在生命末期的作用：“何时才足够？”
JAMA. 2008 Jun 11;299(22):2667-78. doi: 10.1001/jama.299.22.2667.
N Engl J Med. 1991 May 30;324(22):1585-9. doi: 10.1056/NEJM199105303242208.
4
Redressing the balance--the ethics of not entering an eligible patient on a randomised clinical trial.
Ann Oncol. 1992 Feb;3(2):103-5. doi: 10.1093/oxfordjournals.annonc.a058119.
5
Breast cancer trials: a patient's viewpoint.乳腺癌试验：患者视角
Lancet. 1992 Jan 4;339(8784):44-5. doi: 10.1016/0140-6736(92)90157-x.