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将癌症视为一种家族性疾病:患者及其配偶报告的担忧与支持。

Recognizing cancer as a family disease: worries and support reported by patients and spouses.

作者信息

Davis-Ali S H, Chesler M A, Chesney B K

机构信息

Department of Psychology, University of Minnesota, Minneapolis 55455.

出版信息

Soc Work Health Care. 1993;19(2):45-65. doi: 10.1300/J010v19n02_02.

DOI:10.1300/J010v19n02_02
PMID:8153845
Abstract

Data were obtained via mailed questionnaire from 91 adults with cancer and 78 spouses of adults with cancer. Findings suggest that spouses and patients worry equally about their own personal health, and that spouses worry more about patients' futures than the patients do themselves. In addition, spouses and patients report participating equally in the treatment process, yet patients report receiving significantly more social support than do spouses. The results point to the need for expanded attention to the concept of cancer as a "family disease," with special emphasis on the unique and often neglected experience of spouses of adult cancer patients.

摘要

通过邮寄问卷的方式,我们收集了91名成年癌症患者以及78名成年癌症患者配偶的数据。研究结果表明,配偶和患者对自身健康的担忧程度相当,且配偶比患者本人更担心患者的未来。此外,配偶和患者报告称在治疗过程中的参与程度相同,但患者报告获得的社会支持明显多于配偶。这些结果表明,需要更加关注将癌症视为“家庭疾病”这一概念,特别要重视成年癌症患者配偶独特且常被忽视的经历。

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Soc Work Health Care. 1993;19(2):45-65. doi: 10.1300/J010v19n02_02.
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